Podcast Patient Advocacy terbaik (2024)

1
Transforming the Pace of Medicine Development Through Partnerships with the Patient Advocacy Community 32:11

1M ago32:11

32:11

From leveraging existing resources to filling gaps with innovative tools, partnerships throughout the healthcare industry can help meet the needs of more patients and drive impact in an accelerated way. In this episode, Eric Racine is joined by Vicky DiBiaso, Global Head of Patient Informed Development and Health Value Translation at Sanofi, and Sa…

1
Taking a Business Approach to Advocacy and Philanthropy - How a Venture Philanthropist Invests to Impact Peoples’ Lives 16:36

2M ago16:36

16:36

David Panzirer, a trustee of the Helmsley Charitable Trust, discovered his calling when his daughter was diagnosed with type 1 diabetes (T1D). A businessperson at his core, David views healthcare grants as investments, and his team continuously develops a deep understanding of the ecosystem as a key success factor to maximize their impact. Learn fr…

1
Conversations With Patient Advocacy Influencer Christy Snodgrass @ChristyPRN 34:27

3M ago34:27

34:27

Christy Snodgrass is a registered nurse, turned healthcare reformer and patient advocate. While working in the hospital she witnessed firsthand how the complexity and lack of transparency in healthcare placed a huge burden on healthcare workers and patients. She has since built a social media platform of over 800,000 followers where she sheds light…

1
Long-Term Impact: Aggregating Data to Accelerate Innovations for Patients 14:06

3M ago14:06

14:06

To help make an impact for patients, it's important to have a comprehensive understanding of how a disease impacts their day-to-day lives. Michael Osso, Chief Executive Officer of the Crohn's & Colitis Foundation knows this well. He and his team created a comprehensive research ecosystem that harnesses data– from reported anecdotes to clinical data…

1
An Advocate's Journey to Put Patients at the Forefront of Research 13:36

4M ago13:36

13:36

Patient advocacy groups have become a powerful force engaging with clinical researchers. The National Bleeding Disorders Foundation (NBDF) has been one of the best at driving a research agenda that matters to patients, yet they still saw areas for improvement. Maria Santaella, Vice President of Research Strategy at NBDF, realized the importance of …

1
Building a Leader: How to Grow with Your Patient Advocacy Group 21:29

6M ago21:29

21:29

What does it take to grow a patient advocacy group from the ground up to become a driving force for patients in the US? Learn how Julie Block, President and CEO of the National Eczema Association (NEA), defined a bold long-term vision and learned to trust her team to stay true to the plan. Defining a five-year strategic blueprint, NEA took a broad …

1
From Surviving Cancer (twice) to Building Coalitions featuring Rachel Westlake 40:34

6M ago40:34

40:34

Rachel Westlake was a teenage kid with long, curly, red hair when she was diagnosed with large cell lymphoma at the age of 15. During more than a year of experimental treatment protocols, Rachel began to understand her own mortality, something none of her peers had any concerns about whatsoever. She beat the cancer and learned the importance of sel…

1
The First Cancer Center on Native Land – From Promise to Reality 18:25

6M ago18:25

18:25

What does it take to improve access to specialty care for vulnerable and underserved populations? What if the starting point is a complete lack of specialty care services? When Kim Thiboldeaux, CEO of the Northeast Business Group on Health, was told there was no cancer or specialty care on Native American reservations, her first reaction was shock,…

1
From Marketing Executive to Patient Safety Leader featuring Karen Curtiss 28:13

6M ago28:13

28:13

Listen in as we sit down with Karen Curtiss, a Board-Certified Patient Advocate whose journey into patient advocacy started with her quest for a lung transplant to save her dad's life. Karen was working in advertising and marketing at the time, but she dropped everything to advocate for her dad who was near death from pulmonary fibrosis and beyond …

1
Simplifying the Complex Healthcare System featuring Nan Wetherhorn 30:01

6M ago30:01

30:01

On this episode, we talk with Nan Wetherhorn, a South Florida Independent Patient Advocate and nurse since 1976, who learned the importance of advocacy during her mom’s battle with cancer. Nan’s mom was a pharmacist and was more than capable of understanding her diagnosis and her treatment options. But patients can rarely effectively advocate for t…

1
Many Voices, One Goal: The Power of Alliances 20:51

7M ago20:51

20:51

Cancer can be an isolating condition, so Meredith Cowden has made it her mission to ensure other patients are not alone. Meredith, a cancer survivor living with chronic graft versus host disease (cGVHD), responded to adversity by forming the Meredith A. Cowden Foundation with her family to support and advocate for fellow transplant patients. The ke…

1
Behind the Bills: A Crusade For Clarity and Simplicity 29:05

7M ago29:05

29:05

In this episode of Patient Advocacy Now, we speak with Nicole Broadhurst, the founder of Tennessee Health Advocates. Nicole's practice is focused on medical billing, and she provides her clients with the tools needed to decode their healthcare charges, empowering them to take charge of their medical expenses and enhance their quality of life. Join …

1
From Nursing to Wellness Advocacy 24:10

7M ago24:10

24:10

This week, we’re joined by Rajitha Bommakanti, an Independent Patient Advocate and lifestyle coach. Raji was a practicing nurse for more than 30 years, and she now combines her clinical skills with holistic coaching to help change habits and achieve lifestyle goals. During our conversation, Rajitha delves into her utilization of evidence-based prac…

1
Capturing Data to Evaluate and Communicate Impact 17:40

7M ago17:40

17:40

Impact is a word we often use in patient advocacy. We know it’s important to the patients and communities being served, and that it also matters to the funders of advocacy programs. But how do you capture impact, when do you start, where does the information come from, and how should it be communicated? Sanofi host Eric Racine and co-host Elizabeth…

1
Both Sides of the Stethoscope featuring Alan Feren MD, FACS 45:28

8M ago45:28

45:28

Dr. Alan Feren is a former MD who is now practicing as an Independent Patient Advocate. In this episode, Dr. Feren shares his long and impressive journey of perseverance, integrity, and advocacy. As a general surgeon, Dr. Feren was always an advocate for his patients. He took on the tough cases that nobody else wanted to touch. His approach from da…

1
When Friends Become Advocates: It’s Working in Omaha 29:46

8M ago29:46

29:46

For so many independent patient advocates, it can be a scary proposition to go it alone. In this episode, we hear from two good friends from Omaha, Nebraska who joined forces and combined their unique individual skills to create a rewarding, impactful, and fun patient advocacy practice. Nicky Wik has a long history working on the administrative sid…

1
Where Pharmacy Meets Health featuring Claudia Cometa 26:17

8M ago26:17

26:17

Claudia is a clinical pharmacist by training and patient advocate by passion. After over a decade of working inside the healthcare system, she faced her father's cancer diagnosis and later passing. This experience provided her with a deeper understanding of how difficult it is to navigate our modern healthcare system. She decided to do for others w…

1
Healthcare or Optimal Healthcare? There's a Difference featuring Sandra L. Washington 33:18

9M ago33:18

33:18

In this episode of the Patient Advocacy Now podcast, we sit down with Sandra L. Washington, founder of the C.H.L.M.S. Medi-Helpz Foundation, an organization committed to patient advocacy and empowerment. Sandra L., with a background in public policy and healthcare administration, shares her journey and the impetus behind her advocacy work. Motivate…

1
Born Into Pharmacy: A Prescription For Advocacy featuring Nancy A. Taylor 36:25

9M ago36:25

36:25

In this episode, Dr. Nancy Taylor discusses her journey into patient advocacy, stemming from her background as a pharmacist with a passion for personalized healthcare. Dr. Taylor emphasizes the importance of pharmacists as patient advocates and highlights her transition from behind the pharmacy counter to independent patient advocacy, driven by a d…

1
How to Create Partnerships That Build Trust and Deliver Outcomes 15:12

9M ago15:12

15:12

Building trust and improving health in underserved communities can be a daunting challenge. Most would agree that “it takes a village,” but how do you create that village, and who are the right partners? In this premier episode of “Patient Advocacy Voices,” Sanofi host Eric Racine and his co-host Courtney Peters discuss this challenge with Dr. Laur…

1
Patient Advocacy Voices – Trailer 1:36

10M ago1:36

1:36

Oleh Sanofi US Patient Advocacy

1
Season 2 Preview 5:06

10M ago5:06

5:06

In this short preview we share some snippets of the exciting interviews we have in store for Season 2 of the Patient Advocacy Now PodcastOleh Greater National Advocates

1
Season 1 Recap 56:52

11M ago56:52

56:52

In this episode we take a look back at some of our most memorable moments from our inaugural season of the podcast and even get a bit of a sneak peak of what's to come in season 2.Oleh Greater National Advocates

1
From Lyme Disease To Root Cause Advocacy featuring Sylvia Reisman 31:31

11M ago31:31

31:31

In this episode, we talk with Sylvia Reisman, whose passion for patient advocacy began in 1998 when she was researching treatment options for her father who was a five year survivor of stage III pancreatic cancer. In 2006, she became mysteriously ill and ran from doctor to doctor, consulting with a long list of specialists in multiple states befor…

1
Caring For The Displaced: Advocacy For Refugee Communities featuring Emily Bernstein 23:48

11M ago23:48

23:48

In this podcast episode, we sit down with Emily Bernstein, who shares her journey into patient advocacy. Emily's advocacy work began when her mother was diagnosed with brain cancer in 2019. Her mother's challenging path to diagnosis and treatment inspired Emily to get involved in helping others navigate the complex healthcare system. Emily's experi…

1
Ilene Corina: A “Take-Charge” Leader and the Pulse of Patient Safety 40:24

11M ago40:24

40:24

In this Season 1 finale, we speak with Ilene Corina, a patient advocate with over 25 years of experience. Ilene shares her personal journey, which began with the tragic loss of her three-year-old son after a tonsillectomy due to medical errors. This heartbreaking experience motivated her to become an advocate for patient safety. She also highlights…

1
There’s a Tiger Behind That Smile: How Cathy Bond Became an Accidental Advocate featuring Cathy Bond 23:26

11M ago23:26

23:26

Oleh Greater National Advocates

1
The Road to Advocacy: From RV Parks to Healthcare Reform featuring Terry McLellan 45:26

11M ago45:26

45:26

In this episode of the Patient Advocacy Now Podcast, Terry McLellan, a seasoned patient advocate, shares her journey from nursing to becoming an independent patient advocate. Her transition was fueled by her experiences as a travel home health nurse, where she identified a significant need for patient advocacy, particularly among older individuals …

1
From Health Policy to Bedside Nursing and Beyond featuring Adriane Carrier 35:16

12M ago35:16

35:16

Adriane Carrier is an advocate for social justice and health equality with a diverse background in healthcare. In this episode, we discuss her journey from activism during the HIV AIDS crisis in the 1980s to working as a registered nurse and eventually pivoting to becoming a private, independent patient advocate. Adriane highlights her experiences …

1
From Physician Associate to Amputee Advocate an Inspiring Odyssey featuring Tina Hurley 30:54

12M ago30:54

30:54

In this podcast episode, we sit down with Tina Hurley, a board-certified physician associate with extensive experience in vascular surgery, acute care medicine, and wound care. Tina’s medical career involved treating diabetic patients and performing amputations, until she herself became an amputee. This exciting interview reveals Tina’s journey fro…

1
TikTok Health Literacy: A Multi-Faceted Approach to Health Education and Advocacy featuring Morgan Kelly 29:56

1y ago29:56

29:56

Meet Morgan Kelley, a patient advocate based in Chicago who uses social media to educate people about healthcare and health insurance issues. Morgan discusses how she leverages platforms like TikTok to reach a wide audience and provide education on health insurance terminology and how health insurance works in practice. She shares personal stories …

1
From Silicon Valley to Patient Advocacy: Navigating Transgender Health Equity featuring Molly Crowther 30:16

1y ago30:16

30:16

In this conversation with Molly Crowther, a board-certified independent patient advocate based in Berkeley, California, we trace Molly’s unconventional background in the software industry, where she worked on large systems, into the field of independent patient advocacy. Molly goes over her unique journey from the software industry, explaining her …

1
Debby Deutsch and her Journey From Hospital Chaplain to Patient Advocate! 32:06

1y ago32:06

32:06

Debby Deutsch is a Board Certified Patient Advocate who entered healthcare as a hospital chaplain before she became a devoted and passionate hospice worker. As is often the case for Independent Patient Advocates, personal and professional experiences collided, and Debby started to explore her future. She stumbled upon the Center for Patient Partner…

1
How Spiritual Enlightenment Led to Independent Patient Advocacy, Featuring Deidre Kindred 33:35

1y ago33:35

33:35

This highly personal conversation reveals how Deidre was inspired by GOD to help others understand their personal medical journeys and how to collaborate with their healthcare team. That spiritual inspiration led Deidra to begin a patient advocacy business, Your Healthcare Nurse Advocates. Her team of specialty nurses are all certified patient advo…

1
A Candid Discussion With Jeff Byars, Lifelong First Responder and Award-Winning Independent Patient Advocate 35:52

1y ago35:52

35:52

This is the story of a rural EMT (Emergency Medical Technician) who made the career decision to become an Independent Patient Advocate after his young daughter’s misdiagnosis. Jeff Byars is a Board Certified Patient Advocate (BCPA) in Cullman, Alabama. Like so many professional advocates, Jeff knew the healthcare system from both sides. Not only wa…

1
From Family Caregiver to Advocacy Champion: Avrom Fox is a Hero to Patients and Loved Ones 37:53

1y ago37:53

37:53

A social worker and nonprofit agency Director for many years, Avrom Fox was inspired to enter into patient advocacy because of his daughter, who was born with special needs. He advocated for her fiercely for 44 years, since the day she was born, and he fought insurance companies to secure hundreds of thousands of dollars in denied claims. Today, sh…

1
Meet an Engaging and Inspiring Advocacy Role Model 30:43

1y ago30:43

30:43

Rebeka Acosta is the mother of two teenagers born with congenital illnesses. Having worked in hospital systems and for a large insurance company, while caring for the complex medical needs of her family, she took took the leap into Independent Patient Advocacy. Today, she’s on a mission to prepare generations of patients and families to be informed…

1
Advocacy Visionary & Trailblazer Karen Mercereau 36:10

1y ago36:10

36:10

After decades as an ICU nurse where she bore witness to the failings of the healthcare system, Karen Mercereau, RN, iRNPA made a defining decision that laid the groundwork for the field of Independent Patient Advocacy. She left clinical nursing to focus her attention on developing a new practice model designed to safely guide patients through the c…

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