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The Rare Life

Madeline Cheney

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Mingguan
 
This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...
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RaRa Raadio toob sinuni saated, mis haaravad endaga kaasa, ärgitavad mõtlema ja kergitavad suunurki ülespoole. Usume, et leiad siit mõtteid, mis teevad sind rikkamaks inimeseks.
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RARECast

RARECast

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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
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Celebration Church Rarotonga

Celebration Church Rarotonga

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We are a thriving church located in the pacific island of Rarotonga. On this podcast, you will find powerful preaching taken right from our church services. We will also be producing bonus content that is designed to help you live a life of breakthrough and make an impact for Christ! Subscribe and become a part of what God is doing!
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Revolutionary War Rarities is fast, fun, and rarely known history on the American Revolution. All PodCasts are 8-10 minutes long and are released every two weeks. Revolutionary War Rarities is the PodCast from the ”Sons of the American Revolution”. Please subscribe and let’s make history fun again. Thank you for joining us. #americanrevolution #revolutionarywarrarities #americanhistory #foundingfathers #revolutionarywar #sonsoftheamericanrevolution #rarehistory #americanrevolution
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Host Josh Mills brings together a wide variety of adult children of celebrities for a fun, funny, bizarre, jaw-dropping, strange and wonderful look behind celebrity, by the people that know them best: their very own children.
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Bienvenidos al Podcast de Cinoscar & Rarities, espacio del blog de cine Cinoscar & Rarities. Reseñas, estrenos, festivales, noticias, especiales y todas las novedades del séptimo arte. Podcast dirigido por @CinoscaRarities y @CineAmateur http://cachecine.blogspot.com.es/
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Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind.
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Rare with Flair

Casey Greer and Cassandra Mendez

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Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
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A Podcast of Rare Antiquities

A Podcast of Rare Antiquities

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Welcome to A Podcast of Rare Antiquities! Host’s Harry and Geoff discuss and analyze film and television shows. This podcast mainly delves into more obscure and forgotten films but latest releases are sometimes covered. We hope this is the rare antiquity you are looking for.
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Rare Cuts Media Society

Rare Cuts Media Society

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Welcome to the Rare Cuts Media Society! A Book Club Style show where we dive into Movies, TV, Books, Music, and more. Each month one of us will choose a new piece of media to dive into and discuss. Make sure you watch, listen, and read along with us each month so you will be ready for our discussion. Warning: There will be Spoilers!
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Rare But Real

Audrey Broggi

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Young women have been growing up with an indoctrination of what womanhood is and what it should be. They've been taught everything that is in direct opposition to the Word of God. Young women who want to be different from the world are rare but they are real. Audrey Broggi will often be joined by her daughter and her daughters-in-law who desire to be discerning in a day when everything seems to go against God's design.
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Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
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Rarefied Podcast

Meredith Meeker

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This podcast is about rare and wonderful creatures that are at risk of disappearing and the amazing people working hard to save them! Have you ever wanted to know why they call the Loggerhead Shrike the Butcher Bird? Have you wondered where have all the bats gone? Or asked yourself what is being done to protect the creatures that can’t stand up for themselves? Well this is the podcast for you!
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Welcome to P4A Let’s Talk Rare, a monthly podcast highlighting the most important developments in the world of rare diseases orphan drug, cell and gene therapy, hosted by Georgie Rack and Owen Bryant of Partners For Access. To find out more about Partners For Access and our commitment to sustainable orphan drug access for patients with high unmet need, visit partners4access.com
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Mas Que Raras

BloodStream Media

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En esta serie mensual entrevistamos a pacientes, familiares, científicos, investigadores y líderes hispanos en el mundo de las enfermedades raras, para que nos compartan sus historias, alegrías, desafíos y aprendizajes. Acompáñanos a compartir estas historias, desde la odisea del diagnóstico (¡hablando un idioma diferente!) a los conceptos erróneos en nuestra comunidad. Hablaremos de la diversidad cultural en los países de habla hispana e intentaremos comprender mejor los diferentes factores ...
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Formerly Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act. Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medical feild, policy leaders, and those who are just interested in hearing about rare conditions and patient stories. Rare conditions are called zebras hence the zebra striped ribbon. More common conditions ...
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Rare Kidney Disease Show

Travere Therapeutics

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Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...
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Rare Book Chat

Jeremy O'Connor and Michael DiRuggiero

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Dive deep into the fascinating world of rare books with Rare Book Chat. Hosted by Michael DiRuggiero and Jeremy O'Connor, the co-founders of The Manhattan Rare Book Company, this podcast explores the unique and often valuable items that fill the world of rare books, manuscripts, letters, photographs, archives, and more. From historical documents to literary first editions, we'll discuss the stories behind these one-of-a-kind treasures. Join us as we explore the intricacies of the rare book t ...
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I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
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Patient Empowerment Program: A Rare Disease Podcast

n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)

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Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
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Rara-Twimee

ratih susilawati

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Hai. Aku Rara. Aku seneng banget baca buku. Hehe aku pengen buat episode hal-hal menarik dari buku-buku yang ku baca. Ohya dan juga bisa jadi episode isi dari suara hatiku. Jadi ga melulu tentang buku yaaaa
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Rāroa Radio

Rāroa Radio

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This show is the learning project of students from Rāroa Normal Intermediate. Each week we choose a recommendation; something for you to watch, read or experience, and then we tell you why you should check it out! Everything about the show is student-run; from the content creating, to the recording and producing.
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RareErth Podcast

Manoj Radhakrishna

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Ever wonder what makes people take the leap and follow their dreams? That's what RareErth Podcast is all about. I sit down with folks who've turned their passions into careers, asking them the tough questions we all face. How'd they find the courage to start? What keeps them going? Whether it's artists, business owners, or creative thinkers, I'm chatting with people who've taken risks to do what they love. If you're looking for a little inspiration or just enjoy a good story, tune in. Learn ...
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Karena menulis dan merekamnya dengan suara adalah cara mengabadikan sebuah kenangan yang telah usai. Support this podcast: https://podcasters.spotify.com/pod/show/heirare/support
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Patient Worthy is humbled to speak to Brenda Snow, CEO and Founder of Snow Companies and now the bestselling author of 'Diagnosed: The Essential Guide to Navigating the Patient's Journey'. We discuss Brenda's own journey with Multiple Sclerosis and how she has turned it into a career and guidebook for others facing chronic diagnoses. You can find B…
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Today on another encore episode of the Rarified Heir Podcast this Earth Day, we are talking to journalist Michael Simmons, son of National Lampoon co-founder & film producer Matt Simmons. We loved talking to Michael because there is so much history in the (almost) forgotten history of American humor magazine turned pop culture juggernaut, National …
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Dr. Raj Parikh from Hartford Hospital discusses the development of the PH-ILD Detection tool, a screening tool designed to help detect pulmonary hypertension (PH) in patients with interstitial lung disease (ILD) at an early stage. Early detection is critical, as there is often a significant delay in diagnosis of PH in ILD patients, leading to worse…
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Director Jay Curtis Miller joins Glen and Psi to talk about two high-T action classics starring Sylvester Stallone and Mel Gibson (The Patriot, Cliffhanger) respectively. We also talk about Miller's latest venture Knuckles which you can help fund https://www.indiegogo.com/projects/knuckles-an-action-proof-of-concept-film#/Follow Jay Curtis Miller o…
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Today Revolutionary War Rarities takes you inside the steeple of the Old North Church! We discuss Paul Revere, Concord, and Lexington as we celebrate the 250-year anniversary of the start of the American Revolution. Please watch and listen to this special episode of Revolutionary War Rarities, the podcast from the Sons of the American Revolution. P…
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Aprovechando el regreso de "Black Mirror", rescatamos la reseña de Mayra Meza de la 6ª temporada de la serie. ¡Gracias por darle al play! Redes sociales: @CinoscaRarities Blog: https://cachecine.blogspot.com.es/ Correo: cinoscararities@gmail.com Escúchanos en Spotify, Ivoox y Apple Podcast ¡Buscamos colaboradores! ¡Contacta con nosotros!…
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When you’re the parent of a medically complex or disabled child, the experience touches every aspect of our life – including our faith, often in unique and surprising ways. Today, I’m sharing a vulnerable and tender episode, where I interviewed four different women, each coming to the table with their own different spiritual backgrounds, to share h…
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In this episode of Rarefied with host Meredith Meeker, we explore the inspiring recovery story of the critically imperiled Vancouver Island Marmot. Joining Meredith is Adam Taylor, Executive Director of the Marmot Recovery Foundation, who shares his extensive experience in wildlife conservation. Discussions include the unique biology and habitat of…
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Osteosarcoma is a rare and aggressive bone cancer that usually affects children and teenagers. Over the past 40 years, there’s been little progress to improve survival rates, with the five-year survival rate stagnant at about 60 to 70 percent for localized disease and 15 to 30 percent for metastatic osteosarcoma. OS Therapies is developing an exper…
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Fredo returns to the show to talk about the state of the post-tariff economy, Bitcoin, Abrego Garcia, due process, RFK Jr, and more Follow Fredo on X https://x.com/NotJeff_Subscribe to Rare Candy on Substack. Free and paid options https://rarecandy.substack.com/Follow Rare Candy on all platforms https://beacons.ai/rarecandyTimestamps 00:00 Intro/Is…
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Connor Dalby was born with an SCN2A ion channel mutation causing severe epilepsy and eventually leading to hospice care at an early age. It was a chance hallway conversation between Connor’s mom and Dr. Stan Crooke at a conference that sparked the idea for what would become n-Lorem. In a full-circle moment, Connor went on to become the very first p…
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hi, hello, hey—grab your popcorn, because it’s conference time! As many of you know, we’re two best friends with the same rare disease, living our best lives. We truly wouldn’t be friends without Hermansky-Pudlak Syndrome—or without this incredible conference. It’s where our friendship began, and where we reconnect with our amazing community year a…
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Lowres and Hans come by to analyze four certified hood classic movies: Get Rich or Die Trying (2005), Bones (2001), Crooklyn (1994), and Above The Rim (1994). Also some talk on Mickey Rourke's Big Brother fiasco, Adolescence (2025), and more Listen to Certified Hood Classics Vol. 1 https://open.spotify.com/episode/6zAgaSf5qPSydGIgP5Vqx2Follow Lowre…
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Today on another encore episode of the Rarified Heir Podcast, we are talking to musician Jon Klages, grandson of musician and Hi-Fi proponent and record label owner Enoch Light. Our conversation with Jon began with understanding just who his grandfather was. A classically trained musician, Enoch founded his first group, Enoch Light & His Orchestra …
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Dr. Ron Zolty delves into groundbreaking advancements in treating pulmonary arterial hypertension. From the historical use of vasodilators to the revolutionary promise of sotatercept and seralutinib, Dr. Zolty unpacks how science is moving closer to halting—and possibly even reversing—PAH. This Special Edition episode is sponsored by Gossamer Bio. …
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Sarah Bishop is busier than most people. She is an ambitious runner, she is a police detective, and she loves the outdoors in New Zealand. But she started having trouble doing even normal things. She would get so tired and out of breath that her basic activity was nerly down to nothing. But nobody could figure out what was wrong with her. Sound fam…
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One of the main rights guaranteed by the United States Constitution is "Freedom of Religion". Although there were numerous drivers behind guaranteeing that right, few played a more important role than the "Test Acts". Watch this weeks episode of Revolutionary War Rarities as we welcome author Avellina Balestri. Revolutionary War Rarities is the pod…
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Xavier Vidal reseña la serie "PAQUITA SALAS" de Los Javis, disponible en Netflix. Reseña sin spoilers. ¡Gracias por darle al play! Redes sociales: @CinoscaRarities Blog: https://cachecine.blogspot.com.es/ Correo: cinoscararities@gmail.com Escúchanos en Spotify, Ivoox y Apple Podcast ¡Buscamos colaboradores! ¡Contacta con nosotros!…
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Katherine Mathews, MD, winner of the Muscular Dystrophy Association's 2025 Legacy Award for Achievement in Clinical Research for her contributions to understanding and treating genetic disorders affecting the neuromuscular system.…
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For a lot of us, the answer isn’t simple. You can miss your lighter, less-traumatized self and feel proud of who you’ve become. That’s the tension so many of us sit in as medical parents: grieving the carefree, well-rested version of ourselves while also seeing strength, resilience, and depth we didn’t know we had. In this episode, I’m joined by Al…
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Part 3 of Rowdy Roddy Piper In today's conversation, we dive deep into the world of professional wrestling and beyond, as we unwrap the life and legacy of one of its most charismatic figures—Roddy Piper. Join your hosts Andrew, Mike, Rob, and Eric as they explore the complexities of Roddy Piper through the lens of Eric’s Pick, the “A&E Biography WW…
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In this episode of Rarefied, host Meredith Meeker spotlights the Chimney Swift, a bird known for its aerial acrobatics and unique nesting habits. Despite their global security, Chimney Swifts face vulnerability and imperilment across Canada. Meredith is joined by experts Gabriel Evans Cook, Ontario's aerial insectivore biologist, and Gwendolyn Clar…
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When Paul Biderman was born, he had trouble gaining weight. He grew sicker and, at about six months, he was diagnosed with the ultra-rare genetic disease abetalipoproteinemia, a condition that impairs a person’s ability to absorb fats and fat-soluble vitamins. The condition requires adherence to a strict diet and a regimen of daily vitamin suppleme…
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Today on another encore edition of the Rarified Heir Podcast we are talking to Sara Karloff, daughter of the great Boris Karloff. Sara sat down with us to discuss what life was like with her father, one of, if not the most famous of the actors from the golden age of Universal Pictures monster movies along with Bela Lugosi and Lon Cheyney among a fe…
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Meghan Weaver interviews Charlie Taylor from Foundation of Strength, discussing their partnership with gyms to provide fitness programs for individuals with autism, Down syndrome, and other different abilities. Charlie shares his journey, from his early interest in weightlifting to his initiation into training individuals with special needs. They t…
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Pastor Jonathan shares a powerful message on overcoming anxiety. The enemy attempts to control our lives through fear, anxiety, and worry. However, none of these emotions originate from the Holy Spirit. The Bible clearly states that God has not given us a spirit of fear, but of power, love, and a sound mind. Anxiety is essentially a confrontation w…
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We're joined by Organized Meat to discuss Lou Reed's solo career. His electric shock therapy as a kid, The Velvet Underground, Andy Warhol, The Factory, and nearly every solo album Reed released in his career. Follow Organized Meat on X https://x.com/BazillionplusRare Candy Premium Episodes and Written Content https://rarecandy.substack.com/All Rar…
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Bonus Episode of the FSR Sarc Fighter podcast. In this bonus episode of the FSR Sarc Fighter podcast -- a reminder of the fantastic progress that has been made when it comes to making it possible for people to participate in clinical trials. Thanks to the tireless work of the team at the Foundation for Sarcoidosis Research and the support of Mallin…
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For decades, researchers have sought better treatments for pulmonary hypertension in interstitial lung disease, a condition that drastically impacts patients’ quality of life. In this episode, Dr. Rajan Saggar dives into the latest advancements, including new inhaled medications, upcoming clinical trials, and the push for more personalized treatmen…
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Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Arash Mostaghimi, MD, an associate professor of dermatology and a practicing physician at Boston's Brigham and Women's Hospital. Dr. Mostaghimi is a recognized expert on generalized pustular psoriasis (GPP).Oleh Rare Care Podcast
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Send us a text Melissa was 17 when she had her first child Evan. Evan was born with a cleft palate and developed 30 other conditions throughout his life. He wasn't expected to live and doctors told her to take him home and let him pass naturally. She was given what she calls a never list (He will never sit up, he will never talk, he will never stan…
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I included a few pro-Trump tariff clips and a few tariff critics to give you the most even-keeled podcast on the topic! Enjoy. Ad: Protect your wealth with precious metals! Call American Hartford Gold today & get up to $15,000 in free silver on your 1st order! Call 844-399-2448 or Text DREAM to 65532, or Click the link below: https://offers.america…
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Nuevo audio dedicado a la actualidad del cine español, con análisis de 8 estrenos sin spoilers. Incluye reseñas de "Sorda", "La furia", "Tierra de nadie", "Wolfgang", "Desmontando un elefante", "Tardes de soledad", "8" y "Los aitas". Sin spoilers. Locución y montaje de Xavier Vidal. ¡Gracias por escucharnos! Redes sociales: @CinoscaRarities Blog: h…
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When Leah Crum gave birth to her daughter Camilla, she had no idea she was about to be launched into a world of medical unknowns, an undiagnosed rare condition, and 118 days in the NICU. In this episode, Leah talks about the emotional whiplash of life in the NICU, the slow heartbreak of delayed diagnoses, and the grief that comes with being told yo…
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In this episode of 'Rarefied,' host Meredith Meeker continues a deep dive into the life and conservation of the American eel alongside guest Chris Bowser, an education coordinator for the NYSDEC Hudson River Estuary Program. The discussion covers practical ways to help protect eels, debunks myths about the species, and touches on the storied cultur…
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Spinocerebellar ataxia includes a group of rare, genetic, neurodegenerative disorders. People with the condition suffer from the loss of balance, coordination, and muscle control. As the condition progresses, people can lose the ability to walk and speak. There is no approved treatment for SCA, but Biohaven has applied to the U.S. Food and Drug Adm…
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For n-Lorem's Chief Operating Officer, Sarah Glass, the mission of n-Lorem is deeply personal. Her son Ethan was diagnosed with a nano-rare mutation, a journey that has shaped her commitment to the cause. A geneticist by training, Sarah joined n-Lorem to help lead and guide the organization in its efforts to offer hope and potential help through tr…
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