A Vitiligo Support, Education and Awareness Network.
…
continue reading
Explore the powerful story of vitiligo—a ‘white armor’ that challenges, empowers, and inspires resilience. Join us weekly as we delve into the science, medicine, philosophy, and personal experiences behind this intricate skin condition. Hosted by Yan Valle, CEO of the VR Foundation and author of Amazon’s bestselling book on vitiligo, this podcast breaks down cutting-edge research and celebrates stories of strength. With our engaging AI-driven anchors, we make even complex ideas both accessib ...
…
continue reading
1
Understanding Vitiligo: Insights, Research, and Hope
Nathalie Pelletier, Creator of Vitiligo Cover Lotion, Genealogist, and Vitiligo Advocate
Join Nathalie Pelletier, a renowned genealogist and Vitiligo advocate, as she delves deep into the world of Vitiligo. From personal experiences to groundbreaking research, each episode offers insights, expert interviews, and practical advice for those affected by Vitiligo and those seeking to understand it better. Tune in every week for a new episode dedicated to raising awareness, spreading hope, and exploring the latest treatments and cures.
…
continue reading
Podcast sobre o vitiligo, sua definição, seus tipos, possíveis tratamentos e, principalmente, o estigma social em torno dessa doença.
…
continue reading
1
James of Brockton, MA is a Boston VITFriends Leader
43:00
43:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
43:00
How long have you had VitiligoOleh VITFRIENDS
…
continue reading
1
Pharma, Startups, and AI: From 2024 to 2025 (Ep. 17)
29:38
29:38
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
29:38
In the 17th episode of Deep Dive in Vitiligo, we wrap up the year with a thoughtful analysis of the vitiligo drug development landscape, exploring the breakthroughs, challenges, and opportunities shaping the future of care. From pharmaceutical giants to AI-driven startups, we delve into the science, strategies, and collaborations pushing the bounda…
…
continue reading
1
Mind, Body, and Ayahuasca: An Uncharted Approach to Vitiligo (Ep. 16)
53:29
53:29
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
53:29
In this podcast episode Mind, Body, and Ayahuasca: An Uncharted Approach to Vitiligo, we venture into the intersection of ancient Amazonian medicine and modern science to explore innovative avenues for vitiligo treatment. Vitiligo, an autoimmune condition leading to skin depigmentation, presents both physical and psychological challenges. Tradition…
…
continue reading
1
Merry Christmas from our VITFriends family to your family!
47:00
47:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
47:00
Merry Christmas and a Bright, Happy and Healthy New Year to you and your! Love and Blessings!Oleh VITFRIENDS
…
continue reading
1
Inside Pharma: How AI and Patient Advocacy Are Shaping the Future of Drug Development (Ep. 15)
15:19
15:19
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
15:19
In this episode, we uncover the strategies and innovations behind recent pharmaceutical breakthroughs. Despite intense competition and the shifting landscape of Medicare Part D, Incyte continues to lead with strategic maneuvers and a patient-centered approach. We’ll delve deeper into Opzelura, an FDA-approved treatment for AD and vitiligo, shedding…
…
continue reading
1
Vitiligo and Pregnancy: The Complex Connection (Ep. 14)
10:04
10:04
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
10:04
How does pregnancy affect vitiligo, and can vitiligo influence pregnancy outcomes? This episode unpacks the intricate relationship between the two, exploring research on how hormonal changes—particularly cortisol and IL-10—can stabilize or worsen vitiligo symptoms. We also address concerns about potential pregnancy risks, including an increased lik…
…
continue reading
1
The Journey with Vitiligo - Our Guest is Shameka Pittman of Indiana
43:00
43:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
43:00
Tell us about your Vitiligo JourneyOleh VITFRIENDS
…
continue reading
1
Beyond the Waitlist: Skinopathy and VRF are Improving Skin Care (Ep. 13)
14:15
14:15
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
14:15
Did you know the average wait time to see a dermatologist in Ontario, Canada, is over 180 days? And in northern regions, it can stretch up to two years! The call for innovation has never been louder—and AI is stepping up in a big way. In this episode, VRF teams up with Skinopathy to tackle some big dermatology pain points—endless wait times, questi…
…
continue reading
1
Regular Exercise as an Add-On to Vitiligo Therapy (Ep. 12)
9:33
9:33
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
9:33
Could regular exercise be the key to managing vitiligo? In this episode, we explore the surprising connection between fitness and this complex autoimmune condition, shedding light on how lifestyle changes may play a pivotal role in treatment. We dive into the science of vitiligo, examining genetics, oxidative stress, and immune dysfunction, while h…
…
continue reading
1
How and Why Gen Z Engages with Online Information
14:24
14:24
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
14:24
Oleh Yan Valle
…
continue reading
1
Medical Data in the Age of AI: Should You Trust Grok with Your Health Scans? (Ep. 11)
9:09
9:09
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
9:09
In this episode, we dive into Elon Musk’s recent call for X users to submit their medical scans—X-rays, PET scans, MRIs, and more—to his new AI chatbot, Grok, to help improve its accuracy. Musk claims Grok’s capabilities are already impressive and will only get better with user data. But is it safe to share your health data with a public AI system?…
…
continue reading
1
Why and How To Start Vitiligo Support Group? (Ep. 10)
7:49
7:49
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
7:49
Growing up, I watched my cousin’s silent struggle with vitiligo—a journey that took a turn for the better when she found a supportive community. This episode shines a light on the life-changing impact of vitiligo support groups, where connection and empathy offer far more than just a listening ear. Through inspiring personal stories, like that of a…
…
continue reading
1
VitFriends Medical Student Volunteers: Alexis Arza and Mary Tidwell
35:00
35:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
35:00
Alexis and Mary are VitFriends volunteers who sit down with lead medical student, Kristin Tissera to discuss their own experiences with vitiligo.Oleh VITFRIENDS
…
continue reading
1
Navigating Vitiligo Patient Journey Map (Ep. 9)
19:01
19:01
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
19:01
Navigating vitiligo can feel like trying to find your way through the New York City subway on a Friday eve. But just like any journey, it’s all about finding the right path for you. In this episode of Deep Dive, we invite you to explore the many-layered experiences of living with vitiligo, discussing both the emotional and logistical challenges. We…
…
continue reading
1
Outside the Box: Google’s Cracking Down on AI Cheaters
12:02
12:02
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
12:02
Google’s been working on something cool for AI transparency: an invisible watermark in AI text called SynthID-Text. They’ve already applied it to 20 million responses from their Gemini chatbot, and users couldn’t tell the difference. This watermark is like a secret stamp that helps flag AI-generated content, opening the door for others to join in a…
…
continue reading
1
Beyond the Surface: What Your Skin Reveals About You (Ep. 8)
10:50
10:50
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
10:50
What if your skin was more than just a physical barrier? In this thought-provoking episode, we delve into the spiritual and cultural dimensions of skin, exploring how it reflects your inner emotions, beliefs, and even your mental state. From ancient shamanic practices to cutting-edge psychoneuroimmunology, we uncover how skin conditions have long b…
…
continue reading
1
An Interview with Vitiligo Researcher, Dr. Todd Pearson
17:00
17:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
17:00
An Interview with Vitiligo Researcher, Dr. Todd Pearson who sits down with our lead medical student, Kristin Tissera to discuss current and future projects in vitiligo research. VIGOR Study: https://vigor.umassmed.edu/vigor/s/?language=en_USOleh VITFRIENDS
…
continue reading
1
Nailed It: The Surprising Vitiligo Connection (Ep. 7)
14:44
14:44
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
14:44
Could your nails be revealing more about your health than you think? In this episode, we uncover the surprising connection between vitiligo and nail health, guided by a fascinating clinical study that shows how people with vitiligo often experience unique nail changes, such as longitudinal ridging and absent lunula. With input from dermatologists a…
…
continue reading
1
The Hidden Burden of Vitiligo: Research and Real-World Stories (Ep. 6)
13:40
13:40
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
13:40
In this episode, we delve into the profound impact vitiligo has on self-esteem, social interactions, mental health, and overall quality of life. Starting with the basics, we unpack the nature of this autoimmune condition, emphasizing that it affects people of all ethnicities and genders while highlighting the emotional toll of its unpredictable tre…
…
continue reading
1
The Vitiligo Diet: Can What You Eat Heal Your Skin? (Ep. 5)
12:39
12:39
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
12:39
Discover how diet could play a key role in managing vitiligo in this insightful episode. We delve into the science of oxidative stress and the potential benefits of antioxidants like vitamins C, D, and B12 in supporting skin health. From polyphenol-packed coffee, tea, and red wine to the power of fiber-rich whole grains, we explore how specific foo…
…
continue reading
1
1 in 100: Understanding Vitiligo’s Impact on Body and Mind (Ep. 4)
10:16
10:16
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
10:16
Join us as we untangle the complexities of vitiligo treatment and its far-reaching effects on patients’ lives. From the frustrating trial-and-error of therapies like topical corticosteroids, calcineurin inhibitors, systemic steroids, and phototherapy to the emotional toll of the condition, we explore how vitiligo is far more than skin deep. A recen…
…
continue reading
1
Vitiligo Uncovered: Who, Where, and Why? (Ep. 3)
9:47
9:47
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
9:47
Ever wondered how many people are newly diagnosed with vitiligo each year? In the U.S. alone, the number is around 74,600! In this episode, we unpack the difference between incidence (new cases) and prevalence (total cases), showing how these numbers evolve from childhood to adulthood—don’t worry, it’s simpler than it sounds! We also explore how vi…
…
continue reading
1
From DNA to AI: Progress and Hope in Vitiligo Research (Ep. 2)
12:46
12:46
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
12:46
Discover the future of vitiligo treatment in our latest episode, where we spotlight cutting-edge therapies transforming care for this complex condition. From Incyte's Opzelura, the first FDA-approved drug for vitiligo, to Temprian Therapeutics’ DNA-based treatments and Clinuvel’s synthetic hormones for full-body repigmentation, we explore the innov…
…
continue reading
1
Welcome to Deep Dive In Vitiligo! (Ep. 1)
6:42
6:42
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
6:42
In a world where even dogs have podcasts, it’s time for vitiligo to have its own voice—enter Deep Dive in Vitiligo, a weekly news digest from the frontiers of medicine and science, brought to you by Yan Valle, CEO of the Vitiligo Research Foundation. In this debut episode, we set the stage for what this podcast is all about: shedding light on the l…
…
continue reading
1
Can Vitiligo Be Cured? Exploring the Latest Advancements in Treatment (2024)
10:16
10:16
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
10:16
In this episode of Vitiligo Voices, we dive into one of the most common questions about vitiligo: Can it be cured? Host Nathalie Pelletier discusses the latest advancements in vitiligo treatment, including FDA-approved topical therapies like ruxolitinib, promising oral JAK inhibitors such as upadacitinib, and cutting-edge gene therapy research. We …
…
continue reading
1
Akenna's Journey with Vitiligo
1:00:00
1:00:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
1:00:00
Akenna's journey with VITILIGO!Oleh VITFRIENDS
…
continue reading
1
The Vitiligo Journey of Tiffany Stancil of NC
48:00
48:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
48:00
Who is Tiffany??? (Wife, Mother, Model, etc...) When were you diagnosed? Support system Treatment Etc....Oleh VITFRIENDS
…
continue reading
1
Vitiligo Journey of special Guest Stephanie Jenkins
58:00
58:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
58:00
Who is Stephanie How long with Vitiligo TREATMENT Your support system Where are you on your vitiligo journey today Your BOOK Etc.....Oleh VITFRIENDS
…
continue reading
1
Sharing your Vitiligo Awareness Month Experience
44:00
44:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
44:00
CALL - IN Tell us how your June 2024 has been Did you attend WVD and your experience How are you continuing to spread awareness How is you OPZELURA Treatment experience.Oleh VITFRIENDS
…
continue reading
1
An Interview with Pediatric Dermatologist, Dr. Anna Cristina Garza-Mayers
13:00
13:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
13:00
Pediatric Dermatologist, Dr. Anna Cristina Garza-Mayers sits down with our medical student leader, Kristin, to discuss treating vitiligo in children, and what's on the horizon in treatments and in research.Oleh VITFRIENDS
…
continue reading
From Tampa FL, here's Anthony Vitiligo JourneyOleh VITFRIENDS
…
continue reading
1
An Interview with VITFriends First Medical Advisor, Dr. Vaneeta Sheth
25:00
25:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
25:00
Dr. Sheth sits down with Kristin Tissera, our lead medical student to discuss her interest in vitiligo, her work with VITFriends, and what's on the horizon for vitiligo treatment.Oleh VITFRIENDS
…
continue reading
Wishing you and your family a Happy Easter, as we REMEMBER the reason and the sacrific of the crossOleh VITFRIENDS
…
continue reading
1
The Journey with Vitiligo and Treatment with Alicia Roufs
54:00
54:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
54:00
Meet Alicia Roufs our Minnesota Leader and VITFriends Marketing Rep.Oleh VITFRIENDS
…
continue reading
1
The journey with Vitiligo Treatment with Lisa Toner
1:00:00
1:00:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
1:00:00
The journey with Vitiligo The journey to getting Treatment The journey with OpzeluraOleh VITFRIENDS
…
continue reading
1
Todd Meadows Vitiligo Journey
1:09:00
1:09:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
1:09:00
Join Connecticut VITFriends Leader Millicent Meadows interview her brother Todd Meadows about his Vitiligo Journey.Oleh VITFRIENDS
…
continue reading
Greetings. Happy New Year! I'm back to share a brief podcast update, provide a recap of 2023 and discuss the latest vitiligo study hosted by RTI-Health Solutions and L&E Research. Tune in for this brief update and please get involved in this study!Oleh VITFRIENDS
…
continue reading
Chat and Chew with Ms. Millie and Ms. Valarie about Vitiligo.Oleh VITFRIENDS
…
continue reading
1
Serving the VITILIGO Community - Medical Student GUEST
51:00
51:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
51:00
Who - How - When - WHY?Oleh VITFRIENDS
…
continue reading
1
Your JOURNEY with Vitiligo - Guest Michelle Hood, Detroit, MI
59:00
59:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
59:00
Talks about her personal journey with Vitiligo.Oleh VITFRIENDS
…
continue reading
1
The Journey with Vitiligo with Tracy of NY
38:00
38:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
38:00
How has your journey been with Vitiligo?Oleh VITFRIENDS
…
continue reading
Holiday Greeting!Oleh VITFRIENDS
…
continue reading
1
Living Life and Love with Matt Weckel, CEO of neonwild.com
46:00
46:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
46:00
Let's get wild! Neon Wild! Meet Matt Weckel, the CEO of Neon Wild. What is Neon Wild? Neon Wild is an interactive storybook app that allows your child to engage in a personalized exciting adventure. Tune in to learn more about the app and Matt's goal for inclusivity for all children, including children living with vitiligo. Don't miss this fun epis…
…
continue reading
1
Living Life and Love with Marta and Tonja: Vitiligo and Self-Identity
1:32:00
1:32:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
1:32:00
What is self-identity? The recognition of one's potential and qualities as an individual, especially in relation to social context. How does vitiligo change the way you view yourself? My guests share stories about their journey while living with vitiligo. Tune in to hear this important conversation about vitiligo and self-identity.…
…
continue reading
1
Living Life and Love: Incyte Ingenuity Awards for Vitiligo Update
10:00
10:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
10:00
I had the privilege of hosting Todd Edwards from Incyte. We discussed the Incyte Ingenuity Awards for Vitiligo. If you have a great idea you would like to fund, consider applying for the ingenuity awards. Todd provides details about how to apply, who can apply, and important deadlines.Oleh VITFRIENDS
…
continue reading
1
Living Life and Love with Nia Rose: Core Beliefs
1:06:00
1:06:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
1:06:00
Nia Rose, licensed therapist, returns to my show to discuss our core beliefs. What are your core beliefs? Are they fact or fiction? How are we impacted by what we have been taught in our youth or lessons learned throughout adulthood? Turn in to hear why this is such an important topic of discussion.Oleh VITFRIENDS
…
continue reading
1
Living Life and Love : Shazaad Games
42:00
42:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
42:00
Tune in to hear Shazaad's inspiring journey with vitiligo. Everyone has a story to tell. This is his time! Some storytellers are open about the challenges that exist on their vitiligo journey, and other storytellers talk about how they have accepted and embraced the vitiligo road ahead. All stories need to be heard. We can educate the world about v…
…
continue reading
1
Living Life and Love: The Voices of World Vitiligo Day 2023 Part One
12:00
12:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
12:00
Listen to the family share their experience from the World Vitiligo Day Conference 2023 in Atlanta, GA. Stay tuned for part two.Oleh VITFRIENDS
…
continue reading
1
Living with Vitiligo: Finding Hope and Support
9:04
9:04
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
9:04
'Living with Vitiligo: Finding Hope and Support,' the episode explores the journey of living with vitiligo and offers a source of inspiration and guidance. Join us as we delve into the emotional aspects of vitiligo, sharing personal stories and expert insights on coping strategies, self-esteem, and building resilience. Discover the power of communi…
…
continue reading
1
Living Life and Love Relationship Panel: Summer Love
1:04:00
1:04:00
Putar nanti
Putar nanti
Daftar
Suka
Menyukai
1:04:00
What is summer love? How do you keep that special summertime relationship from fading away? What is the best season to fall in love? What's love got to do with it? Join the Relationship Panel's open discussion about finding love during the summer months, how to maintain a loving relationship, and other discussions about the big L-O-V-E.…
…
continue reading