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Failing to protect people at risk for genetic disease from discrimination may have a silencing effect and erode trust in the patient-provider relationship. Read by author Susanna Smith. This article is a reworked excerpt from an unpublished book manuscript. If you enjoy this essay, order the Health Affairs March 2023 issue.…
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During the COVID-19 pandemic, a narrow view of patients’ and families’ preferences has led to the unjust application of policies meant to accommodate dying patients and their families. Read by author Nora Osman Segar from Yale New Haven Hospital and Yale Medical School. If you enjoy this essay, order the June 2022 Health Affairs issue.…
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Shalon Irving’s 2017 death brought national attention to maternal mortality among Black women in the US. This essay remembers her life and legacy. Read by Wanda Irving, chair of the board of Dr. Shalon’s Maternal Action Project. If you enjoy this essay, order the February 2022 Health Affairs Racism and Health theme issue.…
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A mother whose son was stillborn at thirty-six weeks is working to import stillbirth prevention policies from abroad. Read by author Marny Smith, assistant director of Graduate Career Services at the Austin W. Marxe School of Public and International Affairs at Baruch College. If you enjoy this essay, order the January 2022 Health Affairs issue.…
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A genetic counselor uses her own resources to identify the root cause of her mother’s changing personality. Read by author Shivani Nazareth, certified genetic counselor and product manager at Invitae, and a visiting lecturer at the Icahn School of Medicine at Mount Sinai. When Nazareth’s mother became ill, symptoms pointed to dementia but potential…
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A health care leader shares her story of living with major depression and calls for better treatments. Read by author Nora Super, senior director of the Milken Institute Center for the Future of Aging and the executive director of the Milken Institute Alliance to Improve Dementia Care. “I decided to share my story because I think so many of us who …
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A psychiatry professor’s recovery from perinatal depression drives her research to facilitate practice and policy change. Read by author Kara Zivin, a research career scientist at the Veterans Affairs Ann Arbor Healthcare System, and a senior health researcher at Mathematica. Order the October Perinatal Mental Health Theme Issue.…
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Childbirth can be an extremely stressful time in any period. Imagine delivering a baby during a global pandemic, just hours after testing positive for COVID-19 despite taking public health precautions. In this episode of the Narrative Matters podcast, Sara Edmond talks about testing positive for COVID-19 shortly before the birth of her daughter, an…
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Hospice care is meant to optimize quality of life and minimize sources of distress at the end of life. In theory, enrollees are entitled to an unlimited number of days of hospice care, though they have to be recertified after 6 months. But in practice, some patients end up discharged alive rather than re-enrolled. In this episode of the Narrative M…
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Charity care is health care that is provided for free or at a reduced cost to eligible patients, with no expectation that the patient will pay. Under the Affordable Care Act, nonprofit hospitals are required to provide charity care to eligible patients, or risk losing their tax-exempt status. But data show large variation in how much charity care h…
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In June 2019, Hahnemann University Hospital, a teaching hospital that had served poor residents in Philadelphia for more than 170 years, filed for bankruptcy and, within months, closed its doors for good. The complex story of its closure, after being purchased by a private equity executive, highlights concerns with health care finances and how phys…
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