Artwork

Konten disediakan oleh Traci Arieli. Semua konten podcast termasuk episode, grafik, dan deskripsi podcast diunggah dan disediakan langsung oleh Traci Arieli atau mitra platform podcast mereka. Jika Anda yakin seseorang menggunakan karya berhak cipta Anda tanpa izin, Anda dapat mengikuti proses yang diuraikan di sini https://id.player.fm/legal.
Player FM - Aplikasi Podcast
Offline dengan aplikasi Player FM !

Breath Taking: Jessica Fein on Presence, Advocacy, and Navigating MERRF Syndrome

36:30
 
Bagikan
 

Manage episode 454010620 series 3519307
Konten disediakan oleh Traci Arieli. Semua konten podcast termasuk episode, grafik, dan deskripsi podcast diunggah dan disediakan langsung oleh Traci Arieli atau mitra platform podcast mereka. Jika Anda yakin seseorang menggunakan karya berhak cipta Anda tanpa izin, Anda dapat mengikuti proses yang diuraikan di sini https://id.player.fm/legal.

I'd love to hear from you! Send me a text message.

In this episode of Comforting Closure - Conversations with a Death Doula, host Traci Arieli sits down with Jessica Fein, author of Breath Taking, to discuss her family's profound journey caring for her daughter Dalia, who was diagnosed with the rare disease MERRF syndrome (Myoclonic Epilepsy with Ragged Red Fibers). Jessica shares the emotional challenges of becoming her daughter's advocate, the process of navigating a complex medical system, and the lessons she learned about staying present.

Together, they talk about how to find moments of peace, joy, and vulnerability even during life’s most overwhelming challenges. This episode provides a look at how we can balance grief and joy, and how we are capable of more than we ever imagined.

Links/Resources:

  continue reading

72 episode

Artwork
iconBagikan
 
Manage episode 454010620 series 3519307
Konten disediakan oleh Traci Arieli. Semua konten podcast termasuk episode, grafik, dan deskripsi podcast diunggah dan disediakan langsung oleh Traci Arieli atau mitra platform podcast mereka. Jika Anda yakin seseorang menggunakan karya berhak cipta Anda tanpa izin, Anda dapat mengikuti proses yang diuraikan di sini https://id.player.fm/legal.

I'd love to hear from you! Send me a text message.

In this episode of Comforting Closure - Conversations with a Death Doula, host Traci Arieli sits down with Jessica Fein, author of Breath Taking, to discuss her family's profound journey caring for her daughter Dalia, who was diagnosed with the rare disease MERRF syndrome (Myoclonic Epilepsy with Ragged Red Fibers). Jessica shares the emotional challenges of becoming her daughter's advocate, the process of navigating a complex medical system, and the lessons she learned about staying present.

Together, they talk about how to find moments of peace, joy, and vulnerability even during life’s most overwhelming challenges. This episode provides a look at how we can balance grief and joy, and how we are capable of more than we ever imagined.

Links/Resources:

  continue reading

72 episode

Semua episode

×
 
Loading …

Selamat datang di Player FM!

Player FM memindai web untuk mencari podcast berkualitas tinggi untuk Anda nikmati saat ini. Ini adalah aplikasi podcast terbaik dan bekerja untuk Android, iPhone, dan web. Daftar untuk menyinkronkan langganan di seluruh perangkat.

 

Panduan Referensi Cepat

Dengarkan acara ini sambil menjelajah
Putar