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"SCD Stories" a podcast dedicated to amplifying the voices of individuals and families affected by Sickle Cell Disease and other health disparities. Each episode features powerful conversations with individuals who have experienced the challenges of living with Sickle Cell Disease firsthand, as well as experts in the field who are working to advance research, treatment, and care for those living with chronic illnesses and health disparities. Through these stories, we aim to shed light on the ...
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Shyala Pelmon, Living Well With Sickle Cell
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Synopsis: In this episode, host Dwayne Golden speaks with sickle cell warrior and advocate Shyala Pelmon about what it means to live well with sickle cell disease. Charlotte shares her perspective on the importance of taking care of oneself through regular doctor visits, medication, and self-care practices, while also accepting and being at peace w…
Dwayne Golden interviews Sickle Cell Disease advocate and patient, Michelle Par Michelle shares her experiences growing up with Sickle Cell Disease and feeling different from her peers The difficulty of getting others to understand the severity of her pain and the importance of having a support system in place Michelle emphasizes the need to mainta…
Erica Whitherspoon talks about her experience living with Sickle Cell on the SCD Stories podcast. Her parents didn't know much about the illness She was not able to do things like swimming in a cold pool and was always labeled as "the sick one." With the help of three supportive friends, she got through her teenage years. Erica feared being misjudg…
Elle is a recipient of a Bronze Congressional Award and has been featured on NPR, ABC 7, BBC World Service Radio, and a guest on many podcasts. She is a writer, motivational speaker, and social media strategist. CleverlyChanging.com and the Cleverly Changing podcast are a go-to resource on health, wellness, finances, and parenting. She is also a pa…
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EP #8 National Sickle Cell Day, The Toneisha Harris Story
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Toneisha Harris was the first African American female to make it as far as she did on NBC's The Voice, and is releasing a new single called “Let’s Change The World”. Toneisha has a message of encouragement for individuals and families of the sickle community.Oleh Toneisha Harrs, Giant Foods, SCPASCC, Dwayne Golden
Debra is one of only a few assigned social workers for an agency in the commonwealth of Pennsylvania since most agencies use rotating social workers at clinics and hospitals.Oleh Dwayne Golden, Debra Brizzard, SCPASCC, Giant Foods
Twaina and her son have dealt with the secondary and tertiary effects of Sickle Cell Disease and have had countless procedures since he was a child and are not allowing that to stop him from living his life.Oleh SCPASCC, Twaina Williams, Dwayne Golden
Oleh SCPASCC, Dwayne Golden
Shalawn and Jerrick have dealt with the secondary and tertiary effects of Sickle Cell Disease and have had countless strokes since he was a child and are not allowing that to stop him from living his life.Oleh Dwayne Golden, Shalawn James, SCPASCC
The Williams family is a family of 5 and they unite together as advocates to fight not only against Sickle Cell Disease, but also on behalf of any and all under represented health communities.Oleh Dwayne Golden, Fredderick Williams Jr.
Tristan who has dealt with the secondary and tertiary effects of Sickle Cell Disease has had countless strokes since he was a child and is not allowing that to stop him from living his life to the fullest.Oleh Dwayne Golden, Tristan Lee, SCPASCC
Ronald Johnson is a member of the Board of Directors of the South Central PA Sickle Cell Council and the caregiver for his mother. Ronald is the only child in his family with Sickle Cell Disease and 2 of his siblings have the trait.Oleh SCPASCC, Ronald Johnson, Dwayne Golden
Sickle Cell Disease is the leading hereditary blood disease in the nation but one of the least funded diseases. In order to bring the proper funding, support and attention to this disease we launched this podcast to increase awareness to ensure that even at the local support that will influence the national support from national community leaders. …
