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Maria Mendoza's Story
Manage episode 362501374 series 3276234
Konten disediakan oleh Dwayne Golden | SCPASCC, South Central PA Sickle Cell Council, and Dwayne Golden. Semua konten podcast termasuk episode, grafik, dan deskripsi podcast diunggah dan disediakan langsung oleh Dwayne Golden | SCPASCC, South Central PA Sickle Cell Council, and Dwayne Golden atau mitra platform podcast mereka. Jika Anda yakin seseorang menggunakan karya berhak cipta Anda tanpa izin, Anda dapat mengikuti proses yang diuraikan di sini https://id.player.fm/legal.
- Guest: Maria Mendoza, a parent and sickle cell disease advocate for her children and other families with SCD children.
- Maria has 2 children with SCD (Luis, 11 years old, and Andrea, 7 years old) and 1 with SCT.
- Maria stresses the importance of communicating with her children's teachers about their SCD condition and advocating for their needs.
- Lack of privacy, understanding from teachers, and potential bullying from classmates can all contribute to the loss of dignity for the child with SCD.
- Education and awareness are crucial to ensure that employers, educators, and healthcare professionals are knowledgeable about the disease and can provide necessary support.
- Sickle cell disease affects individuals from various ethnicities and backgrounds.
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