ICU - "I See You" - Vestibular Conversations podcast

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Konten disediakan oleh The Vestibular Disorders Association (VeDA) & Unfixed Media, The Vestibular Disorders Association (VeDA), and Unfixed Media. Semua konten podcast termasuk episode, grafik, dan deskripsi podcast diunggah dan disediakan langsung oleh The Vestibular Disorders Association (VeDA) & Unfixed Media, The Vestibular Disorders Association (VeDA), and Unfixed Media atau mitra platform podcast mereka. Jika Anda yakin seseorang menggunakan karya berhak cipta Anda tanpa izin, Anda dapat mengikuti proses yang diuraikan di sini https://id.player.fm/legal.

<div class="span index">1</div> <span><a class="" data-remote="true" data-type="html" href="/series/curated-questions-conversations-celebrating-the-power-of-questions">Curated Questions: Conversations Celebrating the Power of Questions!</a></span>

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Curated Questions: Conversations Celebrating the Power of Questions!

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8 hari yang lalu8d ago

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Curated Questions: Conversations Celebrating the Power of Questions Hosted by Ken Woodward, Curated Questions is a thought-provoking podcast that celebrates the art and science of asking profound questions. This podcast is for curious minds who understand that the right question can unlock new perspectives and drive personal growth. What to Expect Insightful Conversations: Experts from diverse fields share their journey in mastering the craft of inquiry, revealing how it has transformed their lives and careers. Practical Techniques: Gain valuable skills to improve your questioning abilities, applicable in both personal and professional settings. Thought-Provoking Topics: Explore how questions shape leadership, personal transformation, and societal discourse. Why Listen? In an age of abundant information, Curated Questions reminds us that true wisdom lies in asking better questions. This podcast will help you: 1. Enhance critical thinking 2. Improve communication 3. Gain new perspectives on complex issues 4. Develop a nuanced understanding of the world Join Ken Woodward and his guests as they explore the transformative power of thoughtful inquiry. Curated Questions is more than just a podcast – it's an invitation to embrace curiosity, challenge assumptions, and unlock your full potential through the art of asking better questions. Subscribe now and embark on a journey to master the craft of inquiry, one question at a time. Website: CuratedQuestions.com IG/Threads/YouTube: @CuratedQuestions

ICU - "I See You" - Vestibular Conversations

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In the ICU ("I See You") podcast hosts Cynthia Ryan and Kimberly Warner explore the vestibular experience by facilitating conversations between vestibular patients and the health professionals who care for them. They invite patients to share their stories, and healthcare professionals to ask questions so they are equipped to care for, and truly see their patients. This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media.

29 episode

#Fitness #Medicine #The Vestibular Disorders Association (VeDA

ICU - "I See You" - Vestibular Conversations

updated 8 hari yang lalu

Beranda serial•Feed

29 episode

#Fitness #Medicine #The Vestibular Disorders Association (VeDA

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Persistent Postural Perceptual Dizziness (PPPD) 58:04

8 hari yang lalu58:04

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58:04

Persistent Postural Perceptual Dizziness. That’s a mouthful! No wonder we call it PPPD! This relatively new vestibular diagnosis helps explain why some people continue to experience vestibular symptoms when test results are normal. PPPD typically starts shortly after an event that causes acute vertigo, dizziness, or some other disruption of balance, but it may also occur for unknown reasons. PPPD causes dizziness without vertigo, and fluctuating unsteadiness provoked by environmental or social stimuli, such as crowded places. Some critics question whether this is a “garbage” diagnosis for people with unexplained vestibular-like symptoms. In a separate interview with Professor Jon Stone we learn that this is not the case, and indeed, that PPPD can co-exist with other vestibular disorders. In this episode of the ICU Podcast we’re going to talk with a patient who struggles with PPPD and a physical therapist who treats this complex condition. Speaker Bios: Susan Blount is a college professor, publishing and media executive, and certified health and wellness coach who has dedicated her career to education and well-being. After developing Persistent Postural Perceptual Dizziness (PPPD) following a trip to Alaska, she faced life-changing challenges. Yet, through vestibular rehab, cognitive behavioral therapy, and a commitment to strength training, she has redefined what it means to live fully. Now, Susan empowers others with the message that being both healthy and chronically ill is possible. With the support of the VeDA community, she continues to navigate life with resilience, purpose, and joy. Dr. Megan Daly is an experienced Vestibular Physical Therapist and Health Coach. She has her own physical therapy and coaching practice to help people address the root cause of their symptoms, navigate the healthcare system, and modify their lifestyle. She also runs Dizzy Coaches, a vestibular mentoring program for clinicians of all levels. She helps patients with dizziness, migraines, concussions, and balance issues manage their conditions so they can have fewer dizzy days. She has experienced many vestibular conditions personally and brings this empathy to all her patient interactions.…

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Pediatric Vestibular Disorders 47:57

5 weeks yang lalu47:57

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Did you know that vestibular disorders affect children as well as adults? There are increasing reports of vestibular deficits in children. One study suggests that as many as 1 in 5 children in the United States have problems with dizziness or balance. Pediatric vestibular disorders result in vertigo, gaze instability, delayed motor development, and problems with reading. These symptoms are difficult for anyone to cope with, but are especially challenging for children and their families. Pediatric vestibular healthcare specialists are hard to find, it can be difficult for a child to describe their symptoms, and delayed diagnosis can have devastating results. In this episode of the ICU Podcast we’re going to talk to a pediatric vestibular specialist and the mother of a young child who bravely battled vertigo, hearing loss, and a host of other vestibular symptoms. Guests: Andi Gilkey - Andi is a Licensed Clinical Social Worker and the proud mom of a vestibular warrior. Her son is an amazing 11-year-old who loves baseball, music, video games and his friends. He has bilateral sensorineural hearing loss, a unilateral Enlarged Vestibular Aqueduct, childhood vertigo, PPPD and vestibular migraines. His hearing journey has been well supported by an incredible team, but his vestibular journey has been one of the biggest challenges Andi has encountered as a mother. She says it felt like an endless roller coaster full of ups and downs since he was a toddler. Through hard work and the creation of an incredible vestibular team, she is proud to say that her son has been in remission of vestibular symptoms for 10 months. Her ongoing goal is to share her family’s story with others to provide hope and support to the vestibular community. Jennifer Braswell-Christy, PT, PhD, FAPTA : Dr. Jennifer Christy is a Professor in the Department of Physical Therapy at The University of Alabama at Birmingham. Her primary area of research is in the development of innovative intervention methods to improve gaze stability and balance in children with vestibular-related impairments. Related to this area of research, Dr. Christy teaches numerous continuing education courses in the U.S. and abroad.…

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Brain Fog 57:55

10 weeks yang lalu57:55

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In today’s episode of the ICU Podcast, we’re going to talk about brain fog. It kind of sounds like some sort of weather pattern. What is brain fog, and why do so many vestibular patients experience it? Some people describe it as forgetfulness, confusion, a lack of focus, difficulty concentrating or making decisions, or just a vague sense of blurry thinking, like your head is in the clouds. When the brain is dedicating a great deal of energy to maintaining equilibrium and staying steady, activities such as recalling details or short-term memory may become more difficult, and thinking might seem slow. First, I want you to know that this is NORMAL. Today we’ll talk to a patient who knows about brain fog all too well, and a doctor who has helped thousands of women learn to manage this frustrating symptom. Dr. Kathleen Jordan is the Chief Medical Officer at Midi, a virtual care clinic for women going through menopause and perimenopause. She has personally experienced the struggle to find a healthcare provider she can consider a partner in her journey toward wellness. She created Midi to put high-quality, patient-centered care within reach for all women at midlife. As an expert in women’s health, Dr. Jordan is very familiar with brain fog, otherwise known as “menopause brain”, and has some great suggestions for how to recognize and manage it. Ann Walder has struggled with migraines all her life. The word Vestibular Migraine entered her vocabulary after an illness that damaged her inner ears when she was 48. Early on Ann says her brain fog was fierce. She was blessed to connect with the vestibular community and find qualified healthcare providers early in her journey. Her family has been very supportive, and she’s found many friends among VeDA’s Ambassadors. She currently works as an activity specialist with the elderly and says that helping others brings her true happiness.…

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Visually Induced Dizziness 51:57

13 weeks yang lalu51:57

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For many people who have a vestibular disorder, a trip to the grocery store can turn into a battle with dizziness. The bright lights, rows of shelves, patterns on the floor, and crowds of people can trigger symptoms such as dizziness, nausea, and light-headedness. Bending down or turning your head to scan for the items you need. All this can take a lot of energy to navigate. Visually induced dizziness is an umbrella term for a group of symptoms. It can also be referred to as visual vertigo, space and motion discomfort, supermarket syndrome or visual vestibular mismatch. Researchers think it is caused by a conflict between different parts of the brain’s balance system. In this episode of the ICU podcast, we’re going to talk to Elizabeth, who struggles with visual disturbances as a result of her vestibular disorder, and Dr. Morgan Kriz, a physical therapist who specializes in treating this condition. Elizabeth Schneider has been living with a Vestibular Disorder for 21 years. She was first diagnosed at age 36, when she lost her balance and experienced severe visual disturbances. She had to retire from her job as a Registered Nurse because she could no longer work due to her vestibular symptoms. Elizabeth knows what it’s like to struggle with career, money problems, and family stress, especially when you first get sick. Like many of you, she had to navigate through the medical system to get help, which is a taxing effort at best. She decided to become a VeDA Ambassador to bring awareness to this diagnosis and to help others get the help they need! Dr. Morgan Kriz has been practicing vestibular physical therapy for more than 10 years. She understands the journey that many vestibular warriors endure to get a proper diagnosis, obtain a supportive care team, and feel like they are on the right track to get their lives back. She is co-owner of Vestibular Therapy Specialists, with clinics in Seattle, WA and Bend, OR, where she resides with her family. She is also a consultant for Blue Marble Gaming Company, which is developing online home programs and protocols for Vestibular Rehabilitation. She’s a content creator and presenter for Vestibular IQ, a Continuing Education Platform for healthcare providers, and the volunteer director for a support group series called “Boost Your Brain’s Balance.”…

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How Hearing Loss Impacts people with vestibular conditions 53:59

17 weeks yang lalu53:59

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In this episode we’re going to talk about silence. The silence that happens when you lose your hearing. Whether it comes on all of a sudden or gradually, losing your hearing is a life changer. It starts when you have to ask your friends and family to repeat what they just said. Eventually you stop asking, and you begin to feel separate, apart, not included in the conversation. Although there is no cure for hearing loss, fortunately, there are very effective tools and treatments that can help people remain engaged with the hearing world around them. Our guests are: Lynn Johnson: Lynn's life became unbalanced in 2015. She had been feeling off, and out of the blue woke up with imbalance and loud tinnitus (ringing) in her right ear. As days passed, her symptoms continued to get worse. Five months and four doctors later, she was diagnosed with Autoimmune Inner Ear Disease (AIED) and Bilateral Vestibular Hypofunction. Her symptoms include bilateral profound deafness, tinnitus, oscillopsia (jumping vision), and imbalance. Lynn says that if she had been given the correct diagnosis in the beginning, there might have been a chance to save her hearing. Lynn is a VeDA Ambassador and co-leader of a support group for vestibular patients with hearing loss. Molly Smeal: Dr. Molly Smeal is a clinical audiologist in the Head and Neck Section of the Integrated Surgical Institute at the Cleveland Clinic, and is an adjunct professor for the Northeast Ohio AuD Consortium. Dr. Smeal specializes in diagnostics and auditory implantable devices. She also participates in clinical research related to implantable devices. In her career, she has led and participated in several initiatives focused on clinical quality control. She is a published author and invited national and international presenter. Dr. Smeal is currently a participant of the American Cochlear Implant Alliance.…

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Bilateral Vestibular Hypofunction 52:32

22 weeks yang lalu52:32

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In this episode of the ICU Podcast we’re going to talk about what happens when we lose function in our inner ear completely, when the vestibular system on both your right and your left sides is not working. Bilateral vestibular loss, also called hypofunction, can be devastating. It results in severe difficulty maintaining balance, especially when walking in the dark or on uneven surfaces, and a decrease in your ability to see clearly when moving your head. This can lead to an increased risk of falling, blurry vision, dizziness, imbalance, and can eventually lead to other types of physical deconditioning. How does a person cope when their internal gyroscope is essentially turned off, and what medical miracles are available to help them? Our guests today are Dr. Charley Della Santina, one of the foremost researchers in this area, and Donna McKinney, a vestibular patient with bilateral vestibular loss. Guest Bios Dr. Charles Della Santina, MD, PhD Dr. Charley Della Santina specializes in surgery for treatment of otosclerosis, acoustic neuroma, and other problems that cause hearing loss or abnormal vestibular sensation. He is a neurophysiologist with PhDs in biomedical and electrical engineering. Dr. Della Santina founded and directs the Johns Hopkins Vestibular NeuroEngineering Lab. His research group focuses on developing a vestibular implant to treat chronic unsteadiness and oscillopsia caused by gentamicin ototoxicity and other causes of bilateral vestibular hypofunction. Donna McKinney Donna McKinney is a mom of three and a proud grandma. Since her diagnosis of bilateral vestibular loss in 2014 she has had to retire from her physically active career as a youth and senior fitness director. She has become a certified health coach and a diabetes prevention coach and is hoping to return to work on a part-time basis. Donna enjoys cooking, spending time with her family, and going for long rides and day trips with her partner, Alec, who has been by her side through every dizzying step of this diagnosis. In May of last year Donna received the multichannel vestibular implant as part of a study at Johns Hopkins University.…

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Managing Social Events With Dizziness and Imbalance 53:11

26 weeks yang lalu53:11

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The year end holidays are probably the busiest time of year for social events. Family gatherings and work parties, special church services, and cocktail parties with friends. These are meant to be fun and festive, a time to eat, drink, and be merry. But events can often be overwhelming for people with vestibular disorders, with bright lights and lots of people talking loudly and all at once. How can you take part in the joy of the season while also taking care of yourself? Today we’re going to talk to a professional event planner whose job is to make large, busy events inclusive, as well as a vestibular patient, who has developed a strategy for being able to enjoy family gatherings. Mal de Debarquement Syndrome is a central vestibular disorder that typically arises following exposure to passive motion (i.e. boat, airplane, automobile, train, etc.). The characteristic symptom of MdDS is a constant sensation of rocking, swaying, and/or bobbing. On this episode of the ICU - "I See You" podcast, we connect with one of the leading researchers in MdDS and an MdDS patient who runs a support group! This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/ About the Guests: Carol Rexroad Cannon lives with her husband Robert in Hendersonville, North Carolina. They worked together as United Methodist pastors for 35 years before retiring in 2021. Carol was struck with severe vertigo due to vestibular neuritis in 2016, which has since developed into PPPD. Vestibular rehab therapy has helped restore her balance. Carol enjoys hiking mountain trails near her home, visiting with family, and volunteering in the church and community to work for justice, peace, and wholeness. Erika LaDousa has over 20 years of event planning experience, nine of those as the owner of LDS Events, an event planning company that focuses solely on supporting non-profit organizations. Erika also works as a fundraising consultant with Minneapolis-based Fladeboe Advancement. Erika lives in Edina, Minnesota with her husband and two daughters. She loves to travel, volunteer, and spend time at their family cabin in Wisconsin. Hosts: Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/ Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/ VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/ If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/ For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/ If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo. #LifeRebalanced #MakeVestibularVisible #Vertigo #Vestibular #Tinnitus #Dizzy…

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What About Those Who Love and Help Care for Vestibular Patients? 48:24

30 weeks yang lalu48:24

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Living with and supporting someone with a chronic illness can be challenging. First off, we'd like to give a big shout out to all the spouses, parents, friends, and other “care partners” out there who selflessly adapt their lives around the restrictions imposed by their loved one’s vestibular illness. Aborted family events, staying home instead of going out for dinner and a movie, and lots of medical appointments are just some of the complications you might face. On top of that, there is the worry - will your loved one ever get better? The guilt - could you be doing more to reduce your loved one’s burden? And, let’s face it, the exhaustion - when can you take time to care for yourself? Care partners often spend so much time and energy focused on their loved one’s needs, they often sacrifice their own. In this episode of the ICU - "I See You" podcast, we’d like to shine the light on these unsung heroes, and offer them a moment to reflect on what self-care might look like for them. This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/ If you are or know a care partner who has been along side their loved one in their vestibular journey, please invite them to join VeDA's "Supporting Loved Ones" support group at https://vestibular.org/members/slovedonessggmail-com/ About the Guests: Katie Willard Virant is a psychotherapist living in St. Louis. She sees clients in therapy and writes for Psychology Today about chronic illness. She is a graduate of the Brown School of Social Work at Washington University in St. Louis and of the St. Louis Psychoanalytic Institute’s Advanced Psychodynamic Psychotherapy program. She works with adults, adolescents and children on a variety of issues, including loss and grief, life transitions, and living with chronic illness. Christina Mullins: Christina has been married for seven years and is a mother to two children, ages 7 and 5. She enjoys hiking, skiing, traveling, and cherishing moments of fun with her kids. Four years ago, her husband was diagnosed with Ménière's disease, and since then, he has also been diagnosed with Ankylosing Spondylitis, vestibular migraines, and Persistent Postural-Perceptual Dizziness (PPPD). Despite these challenges, Christina remains committed to her family and her passion for helping others. Professionally, she is a licensed clinical social worker in a middle school setting, where she dedicates her career to supporting students and their well-being. Additionally, she has started a blog called Sunshine Parenting in Chronic Weather, where she shares her experiences and insights on being a spouse and parent while navigating the complexities of chronic illness. Hosts: Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/ Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/ VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/ If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/ For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/ If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo. #LifeRebalanced #MakeVestibularVisible #Vertigo #Vestibular #Tinnitus #Dizzy…

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Latest Research and Treatment for Mal de Debarquement Syndrome (MdDS) 1:03:09

35 weeks yang lalu1:03:09

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Mal de Debarquement Syndrome is a central vestibular disorder that typically arises following exposure to passive motion (i.e. boat, airplane, automobile, train, etc.). The characteristic symptom of MdDS is a constant sensation of rocking, swaying, and/or bobbing. On this episode of the ICU - "I See You" podcast, we connect with one of the leading researchers in MdDS and an MdDS patient who runs a support group! This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/ About the Guests: Dr. Yoon Hee Cha is an Associate Professor in the Department of Neurology with subspecialty training in neurotology. She joined the faculty of the department in July 2019 to pursue research on the application of non-invasive brain stimulation methods on the modulation of motion perception, treatment of vertigo, and enhancement of gait and balance. She developed the first neuromodulation-based clinical trials in mal de debarquement syndrome (MdDS). Her research revealed the importance of brain regions not traditionally thought to be part of the vestibular system in the creation of motion perception. Besides research on the use of non-invasive brain stimulation tools such as transcranial alternating current stimulation and transcranial magnetic stimulation, Dr. Cha sees patients in the neurology clinic with a focus on chronic headache, vertigo, and gait dysfunction. Nancy Gray has lived with 24/7 symptoms of MdDS since 2019 after disembarking from an Atlantic Ocean crossing. After feeling like she was in continuous motion for three weeks, she sought medical help. In 2021, she worked with Dr. Sergei Yakushin at Mt. Sinai for a week of treatment, which improved her symptoms. Nancy continues to travel by boat, embracing her condition. Her hobbies include travel, playing the hammered dulcimer, watercolor, collage, writing, photography, genealogy research, and gardening. She has adapted her activities to continue enjoying them despite MdDS. Nancy also leads an MdDS support group, offering valuable insights and advice to others. Hosts: Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/ Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/ VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/ If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/ For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/ If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo. #LifeRebalanced #MakeVestibularVisible #Vertigo #Vestibular #Tinnitus #Dizzy…

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Traveling With A Dizziness or Imbalance Illness 1:00:04

39 weeks yang lalu1:00:04

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Traveling with a vestibular illness can feel impossible and problematic. Obstacles like rapid altitude changes, visual disturbances, patterned airport carpets, and passive motion can amplify symptoms. Many people with vestibular dysfunction need accommodations or restrictions to prevent symptoms, attacks, or flare-ups. Having a vestibular disorder should not prevent someone from traveling. On this episode of the ICU - "I See You" podcast, we talk with two vestibular patients who are also professional travelers! This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/ About the Guests: Arthur Wooten is an award-winning playwright and novelist who works for PASSPORT magazine as a feature travel writer. In 2005, Arthur developed a life-changing diagnosis of bilateral vestibular loss, and, to this day, he still experiences symptoms 24/7. In 2011 Arthur wanted to share the devastating yet surprisingly encouraging aspects of having a vestibular disorder, which resulted in his fictional memoir, DIZZY. The characters are fictional but the medical storyline is all Arthur's. Cynthia Connell is a travel agent with Personal Travel Management in Vancouver, Canada and a certified Spanish to English translator. She got her start in the travel industry over 20 years ago as a tour leader, taking small groups of international travelers around Mexico and Central America on 2-3 week trips. She specializes in adventure travel and has set her wandering feet on all seven continents. Her journey as a vestibular patient began in 2019 with a diagnosis of vestibular neuritis, which moved on to PPPD and possible vestibular migraine. Hosts: Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/ Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/ VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/ If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/ For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/ If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo. #LifeRebalanced #MakeVestibularVisible #Vertigo #Vestibular #Tinnitus #Dizzy…

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Can Screens Trigger Vertigo and Dizziness? 1:01:30

43 weeks yang lalu1:01:30

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Devices—can’t live with them, can’t live without them. When I was in the first two years of my vestibular disorder I remember longing to turn back the clock to the 1800’s. Televisions, computer screens, even my phone sent my nervous system reeling so it took me years to return to modern communication. And because I wasn’t connecting digitally during that time, I had no idea others experienced the same problem as me and became very isolated. When we are symptomatic, trying to scroll through an article on the phone or watch a movie on a tablet can be torture. Attending a Zoom meeting with multiple people talking and moving can be unbearable. Even texting back and forth can be dizzying. But staying connected is an important part of our recovery, and this often is through virtual mediums, so it is important to use every tool available to improve our ability to function while using a digital device. Even small changes can have a big impact. In this episode of the ICU - "I See You" podcast, we take some time to explore these challenges and discuss a multitude of ways to make our digital companions more user-friendly. This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/ About the Guests: Dr. Cheryl Berger-Israeloff has more than 20 years experience practicing optometry and focuses her practice on a subspecialty called neuro-visual optometry, which deals with the diagnosis and treatment of vision-based problems commonly found in the brain-injured population. Dr. Israeloff is a pioneer in the optometric treatment of conditions that cause blurred vision, motion sickness, and headaches. She graduated from Cornell University and SUNY College of Optometry. Alexandra Biss has had dizzy symptoms since she was in her teens, but she officially started her vestibular journey during the start of the COVID pandemic in 2020 when she completely lost her balance and was unable to walk without support. She was ultimately diagnosed with chronic vestibular migraines that stripped her independence and stability. After multiple doctor visits she finally met a neurologist who was a vestibular specialist. While her symptoms are still prominent, through medication and vestibular therapy she has begun getting back on track. She currently works as an underwriting analyst at an insurance firm in Canada and has started running, which is now a central passion of hers. On the days she was bed bound, never once did she think she would be able to take part in any sport again. Her newly-found love for running has allowed her to regain stability and confidence. She has completed two half marathons, both raising money for VeDA, and is currently preparing for her first full marathon this coming May. Hosts: Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/ Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/ VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/ If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/ For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/ If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo. #LifeRebalanced #MakeVestibularVi…

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Dizziness and Vertigo Make You Anxious? 56:00

48 weeks yang lalu56:00

56:00

As you know, dealing with vestibular disorders can take a toll on a person’s mental well-being. Feelings of stress, sadness, and uncertainty about the future are common, and these emotional responses can manifest as anxiety. Anxiety and vestibular symptoms can create a vicious cycle where one exacerbates the other, and it’s ever so hard to break that cycle. Addressing anxiety in people with vestibular dysfunction often involves a multifaceted approach that may include vestibular rehabilitation therapy, cognitive-behavioral therapy (CBT), relaxation techniques, and medications if necessary. By addressing both the physical symptoms and the associated anxiety, people can better manage their condition and improve their quality of life. Today we’re going to be talking with psychologist, Joanna Wolfson, and vestibular patient, Lauren Colella, about why anxiety is so prevalent among people with vestibular dysfunction, and what are some practical things you can do to manage it. This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/ About the Guests: Joanna Wolfson, PhD, ABPP is a senior psychologist at Rusk Rehabilitation, NYU Langone Health, and Clinical Assistant Professor of Rehabilitation Medicine at the NYU Grossman School of Medicine. She holds a doctorate in Clinical Psychology from Fairleigh Dickinson University, completed her internship at NYU Rusk, and did a postdoctoral fellowship at the Manhattan VA in Health Psychology and Primary Care. She is board certified in clinical health psychology. Dr. Wolfson provides individual and group psychotherapy to patients with a wide range of medical presentations, including vestibular conditions. She co-leads a vestibular stress management group, which has been running for the past 8 years. She also supervises interns in the field of health psychology and presents on topics including integrated healthcare, motivational interviewing, and health anxiety. Stefanie Adams suffered multiple traumatic brain injuries and had her third concussion in 2017. As soon as she hit her head she felt off-balance and started to sway. Over the next year she developed terrible migraines and dizziness. Eventually the migraines left, but the dizziness stayed. A year later she discovered that she had a perilymph fistula (a hole in the membrane separating the middle and inner ears). When she got the flu, she blew her nose and the room started to spin. She’s had surgery to repair the fistula and is now a VeDA Ambassador and vestibular advocate. In her professional life, Stefanie is an Account Manager for a healthcare communications agency. Hosts: Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/ Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/ VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/ If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/ For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/ If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo. #LifeRebalanced #MakeVestibularVisible #Vertigo #Vestibular #Tinnitus #Dizzy #Balance…

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Motherhood With Dizziness and Imbalance from Vestibular Disorders 47:02

1 year yang lalu47:02

47:02

Caring for oneself with a vestibular disorder is not easy—add infants, children and teens into the mix and the spectrum of experience can span from feeling downright impossible to uniquely rewarding. In honor of Mother’s Day this month and our community of mothers with vestibular disorders, this episode of the ICU - "I See You" podcast dives into the multi-layered experiences of mothering “dizzy.” We are joined by vestibular patients and mothers, Kayla McCain and Marissa Aldrete to discuss considerations in family planning, pregnancy and vestibular disorders, managing self-care, and how to include family in your vestibular experiences so you feel more supported and less overwhelmed and alone. This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/ About the Guests: Marissa Aldrete is the mother to a fifteen year old son and has been a vestibular patient for over 12 of those years. She lives with vestibular migraine, chronic migraine, and PPPD. When she first developed symptoms, she was a preschool teacher with a three year old at home. Like so many vestibular patients she saw multiple physicians who either thought she had anxiety or wanted to try hefty meds that would leave her unable to function. In 2014, she experienced a remission of symptoms and went back to a “normal” life for the next four years. But in 2018 her symptoms returned with a vengeance and she became housebound. Eventually, under the care of Dr. Shin Beh, she was able to slowly resume life again. Marissa joined VeDA as an ambassador and started an online support group with fellow vestie, Joy Holten. Joy and Marissa also have a podcast, Finding Joy in Your Vestibular Journey. Recently Marissa became a health and wellness coach so she can share what she’s learned with others. Kayla McCain began experiencing symptoms of vestibular neuritis and vestibular migraine in October of 2016. Like many vestibular patients, Kayla fell into despair during the early stages of her diagnosis. However, after getting established with a neurologist (Dr. Shin Beh) and treatment plan, she was able to adapt to her new normal, became an ambassador with VeDA and began sharing her experience online at Truekaylaisms.com. Kayla left the corporate world shortly after her diagnosis and opened her own business (Kayla McCain Marketing) to be able to continue to pursue her love for content marketing while controlling her work environment with daily dizziness. In 2020, Kayla became a mom - something she wasn’t sure was a possibility with a vestibular disorder. Today, she continues to work from home with her two young boys Declan (4) and Greyson (1) while managing the ups and downs of her vestibular migraine. Hosts: Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/ Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/ VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/ If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/ For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/ If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo.…

2 years yang lalu44:29

44:29

Anyone who has ever experienced vestibular dysfunction will tell you, vestibular symptoms are hard to describe. It can be difficult to explain the difference between symptoms like vertigo, dizziness, imbalance, spinning, disequilibrium, and more. Factors like acute symptoms and anxiety can make it even harder to paint a clear picture for your healthcare provider. In this episode, vestibular patient Joy Holten and medical student Marcus Paoletti discuss this issue and provide insight into how your symptoms can be best communicated to your physician. About the guests: Marcus Paoletti is a second-year medical student at Keck School of Medicine, USC. Before that, he attended the University of California, Berkeley, where he received a degree in Molecular and Cellular Biology. He became interested in otolaryngology and healthcare related to the head and neck early in his training due to the complexity of the region’s anatomy and vital importance of these structures. He is also the co-president of the otolaryngology student interest group at his medical school. Joy Holten is a 48-year-old mother of 2 who lives in Austin, TX. In 2018 she began experiencing constant dizziness after an infection. For 3 years she suffered daily symptoms but was still able to work from home. In 2021 that all changed. When her symptoms went from bad to worse she visited the ER 5 times. She was finally forced to take medical leave. Eventually, she found Dr. Shin Bey, one of the leading “dizzy” neurologists in the county, who diagnosed her with Vestibular Migraine and PPPD. Since then, Joy co-founded a YouTube series called “Finding Joy in your Vestibular Journey” and hosts a Zoom support group for fellow vestibular sufferers. Hosts: Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/ Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/ This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media . ----- VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/ If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/ For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/ If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/ . Additional benefits include patient education articles you can brand with your logo.…

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