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A Celebration of the Life of Wilodene Perry
Manage episode 388148450 series 2944741
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Today, we gather around the digital campfire to share the enchanting and hard-hitting story of Wilodene, a tenacious woman who lived with seizures for decades before her genetic heart condition, Long Q-T Syndrome, was discovered. Inviting us through the pages of this striking tale is her daughter, Jackie Renfrow, who returns to brighten our podcast with her stories of hope, resilience, and advocacy. As a special memory, Jackie and her mother appeared on our podcast together, their shared hope being that their story could potentially save someone else’s life.
The journey didn't end with just Wilodene. Jackie's narrative continues as she traces the impact of Long Q-T Syndrome on her family over the course of seven decades. She recounts the measures she had to implement to protect her loved ones from potentially fatal seizures. Jackie's story is punctuated with moments of fear, especially for her grandchildren and great-grandson, but she meets these challenges head-on, embodying the courage and resilience that her mother passed down to her.
As we traverse this journey with Jackie, we're given an intimate glimpse into her efforts to comfort her mother in the face of death, while also securing professional help and community support. Jackie’s plans for advocacy work in raising awareness about Long Q-T Syndrome form the cornerstone of our conversation, showcasing her commitment to continue her mother's legacy. Join us for this heartwarming tribute to a woman who defied her condition to live a full life and to a daughter who continues the fight with hope, resilience, and advocacy.
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