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76. Kindergartener’s Fight for Life: Urgent Need for Kidney Donor - Spread Awareness - Donate Hope
Manage episode 401917063 series 3012628
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URGENT NEED FOR KIDNEY DONOR!
Please join us as we sit down with Kendra Tann, a mother of four who bravely opens up about their family’s need of a kidney donor to save their daughter’s life, however this isn’t the first time they have walked this path. When Kendra noticed her oldest daughter Sydney's high blood pressure and liver abnormalities, little did she know that it was the onset of a condition that would transform their life. The diagnosis of cranioectodermal dysplasia came as a shock and propelled them into a world where rare genetic disorders are not just medical terms but everyday realities. As Kendra shares her heartfelt story, you'll be moved by her strength and the journey towards Sydney's life-saving kidney transplant at the tender age of four. Her story is one of courage and resilience, bringing much-needed awareness to the realities families face when dealing with similar health battles.
The path from diagnosis to transplant is never walked alone. This episode is a tribute to the support systems and the profound connections that grow within the transplant community. Kendra opens up about the physical and emotional toll of becoming a living donor for her daughter, Sydney, a role that comes with its own set of post-surgery obstacles. Yet, amidst the talks of unexpected pregnancy and the balancing act of family life, there's an overwhelming sense of gratitude for the community that stands with them.
Just a few years after Sydney’s transplant, Kendra and her family are faced with the same diagnosis as they race to find another living donor for their youngest daughter, Olina. The journey Kendra and her family have been on and will continue to be, illuminates the process and support network for those considering the selfless act of organ donation. In this conversation, we aim to empower our listeners with information and avenues for support. Every act of engagement, from sharing our podcast to reaching out, strengthens the fabric of our community. Join us in this essential conversation as we share a family’s picture of faith & resilience, the importance of advocacy, and the undeniable power of sharing - one that might just save a child’s life.
Follow Olina's Journey On Instagram: @tannkidneykid
Live Donor Inquiries:
Living Donor Nurse Coordinators
Samantha Brenner 913-588-5049 sbrenner@kumc.edu
Brittney 913-588-0266
To read more about their story and donate financially:
*ALL donations made on this site to COTA for Olina go directly to the family to use for transplant related expenses. COTA is a 501(c)3 nonprofit organization. Gifts to COTA in honor of Olina are tax deductible to the fullest extent by law. This includes but is not limited to medical costs, pharmacy costs, surgical costs and much more. Funds raised can even go towards any live donor expenses such as household utility costs, transplant travel expenses and more.
COTA also provides the family with a free website to share via a blog platform, this is coming soon!
Fundraise in your community for Olina:
Lisa Hoskins, a dear friend of the Tann family and a momma to four is the main volunteer contact for fundraising events through COTA in honor of Olina. Please contact Lisa Hoskins to inquire about setting up a fundraiser in your community to directly help the Tann's during this difficult season. Ideas: 5K fundraiser, a contest fundraiser, lead a matching gift drive or simply lead a neighborhood picnic fundraiser.
Lisa Hoskins: hoskinsLM@gmail.com
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