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Navigating Younger Onset Dementia: Insights from a Youth Advocate Olivia and Patti from Lorenzo's House
Manage episode 436841815 series 3430082
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This episode highlights the impactful work of Lorenzo's House, supporting youth and families dealing with younger onset dementia. Featuring Olivia Compton, a 15-year-old youth leader, and Patti LeFleur, who leads the organization's youth programming, the discussion delves into empowering young caregivers.
Olivia shares her journey, explaining how she found support and community through Lorenzo's House after her father was diagnosed with Lewy Body Dementia. She describes the transformative impact of the organization's "light club" groups, which provide a safe space for young people to connect, share experiences, and learn mindfulness techniques. Patti elaborates on Lorenzo's House's three core programs - the match, clubs, and youth summit - all aim to combat isolation, build alliances, and drive dementia justice. The discussion highlights the organization's commitment to centering youth voices and experiences and empowering young caregivers to advocate for change.
Olivia's wisdom and resilience shine through as she offers advice to other youth navigating the challenges of having a parent with dementia. The episode underscores the critical need to support caregiving youth, who often face stigma and struggle to find resources tailored to their unique experiences. Lorenzo's House emerges as a beacon of hope, providing essential services and fostering a growing community of young advocates determined to make a difference.
About:
Olivia:
Olivia, a 15-year-old 9th grader, is a vital part of Lorenzo's House. After her father's Lewy Body Dementia diagnosis, she found community in the Teen Light Club and served as a Youth Lead at the 2023 and 2024 Youth Summit. Olivia leads mindfulness sessions, openly shares her story, and warmly welcomes others. A talented pianist, cellist, and choir singer, she enjoys video games, reading, crafts, and anime. Passionate about helping peers through similar challenges, Olivia cherishes the connections and friendships she's built at Lorenzo's House.
Patti:
Patti is the former carepartner to her mom, Linda, who had younger-onset dementia - and a former elementary educator of over 10 years. Patti designs and leads our youth programming with intentionality, knowledge and love. Her capacity to connect with family members through lived experience and profound generosity of spirit sets the tone for how Lorenzo’s House shows up for families. Patti has a Masters Degree in Instructional Leadership and is a Certified Dementia Practitioner, has spent countless hours volunteering with people living with neurocognitive disorders, and as a community educator for the Alzheimer’s Association.
Social Media:
Website: https://lorenzoshouse.org/
Facebook: https://www.facebook.com/lorenzoshouseofficial/
Instagram: https:
Confessions of a Reluctant Caregiver
Sisterhood of Care, LLC
169 episode
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