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The EYE OPENING Reality Of Accessing Life-Changing Medications & FDA Bureaucratic Battles With Judy Stecker

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Konten disediakan oleh DC EKG and Evergreen Podcasts | Big Whig Media. Semua konten podcast termasuk episode, grafik, dan deskripsi podcast diunggah dan disediakan langsung oleh DC EKG and Evergreen Podcasts | Big Whig Media atau mitra platform podcast mereka. Jika Anda yakin seseorang menggunakan karya berhak cipta Anda tanpa izin, Anda dapat mengikuti proses yang diuraikan di sini https://id.player.fm/legal.

In this episode of DC EKG, former HHS policy staffer now activist Judy Stecker shares her deeply personal journey advocating for her son Wheeler, who suffers from a rare genetic disease. Peeling back the layers of FDA bureaucracy, Judy exposes the rigid, bureaucratic structure that obstructs access to life-changing medications. We discuss the stringent regulations that hinder innovation, ethical considerations surrounding clinical trials, the impact of Operation Warp Speed on expediting procedures, as well as invaluable insights on fostering broader accessibility to groundbreaking treatments.

-Links-

Judy’s WSJ article:

https://www.wsj.com/articles/the-fda-could-help-save-my-son-from-a-rare-disease-bureaucracy-efficacy-7090ac82

Wheeler’s Warriors:

https://wheelerswarriors.org/our-story

Follow us:

https://twitter.com/DCEKGpodcast

  continue reading

81 episode

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iconBagikan
 
Manage episode 412658650 series 3439064
Konten disediakan oleh DC EKG and Evergreen Podcasts | Big Whig Media. Semua konten podcast termasuk episode, grafik, dan deskripsi podcast diunggah dan disediakan langsung oleh DC EKG and Evergreen Podcasts | Big Whig Media atau mitra platform podcast mereka. Jika Anda yakin seseorang menggunakan karya berhak cipta Anda tanpa izin, Anda dapat mengikuti proses yang diuraikan di sini https://id.player.fm/legal.

In this episode of DC EKG, former HHS policy staffer now activist Judy Stecker shares her deeply personal journey advocating for her son Wheeler, who suffers from a rare genetic disease. Peeling back the layers of FDA bureaucracy, Judy exposes the rigid, bureaucratic structure that obstructs access to life-changing medications. We discuss the stringent regulations that hinder innovation, ethical considerations surrounding clinical trials, the impact of Operation Warp Speed on expediting procedures, as well as invaluable insights on fostering broader accessibility to groundbreaking treatments.

-Links-

Judy’s WSJ article:

https://www.wsj.com/articles/the-fda-could-help-save-my-son-from-a-rare-disease-bureaucracy-efficacy-7090ac82

Wheeler’s Warriors:

https://wheelerswarriors.org/our-story

Follow us:

https://twitter.com/DCEKGpodcast

  continue reading

81 episode

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