Navigating a Month in the Life of Raising a Medically Complex Child

Empowered by Hope

There is so much joy to be had in the midst of the chaos. That is the key takeaway as Emily K. Whiting shares a month in the life of pediatric complex care for her daughter Charlotte.
As Emily recounts the last month's wild journey of outpatient appointments, ER visits, infections, unidentified excruciating pain episodes, fevers, DME orders, IVs, catheters, blood draws, ultrasounds, x-rays, prescription refills, side effect management and even a vacation snuck in there somehow, you'll get a sneak peak into the constant barrage of medical management for a child with complex needs.
As Emily shares the sometimes overwhelming amount of issues that arise in Charlotte's care, she coaches listeners on how to find the joy in the midst of the chaos.
In this episode you'll learn how to focus on a mindset that allows for reality and emotion, while also holding onto the positive aspects of the situation. Many listeners will relate to Emily's 'month in the life' because your life looks very similar.
If you're looking for relatability and some help with your mindset about your life of pediatric medical complexities, this episode is for you!
We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please consider leaving a review on your preferred podcast platform. Our goal is to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.
To get more personal support, connect with us directly at: CharlottesHopeFoundation.org
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Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon

Chapter

1. Navigating a Month in the Life of Raising a Medically Complex Child (00:00:00)

2. Month in Complex Care (00:00:13)

3. Medical Challenges and Vacation Protocols (00:12:37)

4. Navigating Life With Constant Medical Challenges (00:25:47)

5. Hope Foundation Updates and Support (00:38:26)