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Empowering Voices in the Muscular Dystrophy Community
Manage episode 438378520 series 3424235
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Join us as Mindy Henderson, Vice President of Disability Outreach and Empowerment for the Muscular Dystrophy Association (MDA), shares her inspiring journey with spinal muscular atrophy. Mindy offers a profound understanding of living with a neuromuscular disease, the impact of family support, and the transformative role of medical advancements. She also highlights MDA’s critical support, discusses her book "The Truth About Things that Suck," and the film "Good Bad Things." Plus, hear about her upcoming advocacy efforts in Washington D.C., emphasizing the importance of awareness, research, and civic engagement for individuals with muscular dystrophy.
Click the link to purchase tickets to stream “Good Bad Things”: veeps.com
Learn more about MDA at www.mda.org
Chapter
1. Living With Muscular Dystrophy (00:00:00)
2. Family Influence and Medical Advances (00:10:51)
3. Advocacy and Awareness for Muscular Dystrophy (00:19:51)
114 episode
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