Learn About NMOSD Feat. Patient Advocates Dr. Maggie Kang And Nell Choi Wait, How Do You Spell That? A Rare Disease podcast

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Wait, How Do You Spell That? A Rare Disease Podcast « »
Learn About NMOSD feat. Patient Advocates Dr. Maggie Kang and Nell Choi

6M ago 25:27

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In this episode of the podcast we discuss neuromyelitis optica spectrum disease (NMOSD), a rare autoimmune disease that effects central nervous system function and can result in symptoms such as pain, vision loss, limb weakness and numbness. Joining us are Dr. Maggie Kang and Nell Choi, mother and daughter patient advocates who talk about NMOSD and their experiences since Nell was diagnosed at a young age.

To learn more about NMOSD go here: NMOSD at the National Organization for Rare Disorders

You can pick up a copy of Nell's book here: My Hospital Story - Amazon

Learn About Dr. Kang's work supporting the wellbeing of parents of children with rare conditions here: MaggieKangMD.com

… continue reading

66 episode

#Fitness #Rare Disease #Patient Worthy

Artwork

Learn About NMOSD feat. Patient Advocates Dr. Maggie Kang and Nell Choi

Wait, How Do You Spell That? A Rare Disease Podcast

published 6M ago

Bagikan

MP3•Beranda episode

Konten disediakan oleh Patient Worthy. Semua konten podcast termasuk episode, grafik, dan deskripsi podcast diunggah dan disediakan langsung oleh Patient Worthy atau mitra platform podcast mereka. Jika Anda yakin seseorang menggunakan karya berhak cipta Anda tanpa izin, Anda dapat mengikuti proses yang diuraikan di sini https://id.player.fm/legal.

In this episode of the podcast we discuss neuromyelitis optica spectrum disease (NMOSD), a rare autoimmune disease that effects central nervous system function and can result in symptoms such as pain, vision loss, limb weakness and numbness. Joining us are Dr. Maggie Kang and Nell Choi, mother and daughter patient advocates who talk about NMOSD and their experiences since Nell was diagnosed at a young age.

To learn more about NMOSD go here: NMOSD at the National Organization for Rare Disorders

You can pick up a copy of Nell's book here: My Hospital Story - Amazon

Learn About Dr. Kang's work supporting the wellbeing of parents of children with rare conditions here: MaggieKangMD.com

… continue reading

66 episode

#Fitness #Rare Disease #Patient Worthy

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