Podcast Jennifer Rosen terbaik (2024)

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Susannah's Progress: Two Years of ASO Treatment with Dr. Jennifer Bain and Luke Rosen 40:38

6d ago40:38

40:38

Two years of treatment—two years of strength, courage, and blazing a trail for other nano-rare patients! 🎉 Susannah's story was the first shared on the Patient Empowerment Program podcast. Now, two years later, her father, Luke Rosen, and her physician, Dr. Jennifer Bain, detail Susannah’s remarkable progress since beginning regular treatments—high…

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Ep. 16 - From Survival To Self-Governance: Jessica Jansen’s Path to Empowerment 41:09

7d ago41:09

41:09

Join host Jennifer Rosen on Mind Your Nest for an enlightening conversation with Jessica Jansen, who transformed her life from navigating personal trauma to becoming an advocate for political change. Born in rural Michigan, Jessica shares her powerful story of overcoming abuse, economic struggles, and the challenges of motherhood, all while discove…

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Sneak Peek of the 2024 Nano-rare Patient Colloquium 41:44

20d ago41:44

41:44

Take a glimpse behind the curtain as we offer you a sneak peek of the 2024 Nano-rare Patient Colloquium. We’re thrilled to welcome back longtime biotech journalist and current Features Editor of The Transmitter, Brady Huggett, to the podcast. In an interview with n-Lorem founder and CEO Stan Crooke, they preview the upcoming Colloquium, diving into…

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Ep. 15 - From Knocked Down to Standing Tall: Jeremy's Journey of Family, Fitness, and Recovery 43:42

21d ago43:42

43:42

In this powerful and heartwarming part two, Jennifer Rosen continues her deep dive with Jeremy Plummer as he shares his inspiring road to recovery. From the moment his uncle knocked on his door, ready to deliver what his family feared was the final blow, to the transformative power of CrossFit and family reconnections, Jeremy's story is one of resi…

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2024 Elections & the Disability Vote - with Michelle Bishop, Monica Wiley, and Jack Rosen 1:28:56

1M ago1:28:56

1:28:56

In this episode of You First, hosts Maddie and Keith dive into disability voting rights and the upcoming 2024 election with experts Michelle Bishop, Monica Wiley, and Jack Rosen from the National Disability Rights Network (NDRN). The discussion explores voting accessibility, challenges faced by disabled voters, and new support resources in Florida.…

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The Building Blocks of What's Possible with David Butler, Ph.D. 29:50

1M ago29:50

29:50

Hongene Biotech is a producer of RNA building blocks – the first step for what’s possible in RNA drug-discovery and development. David Butler, Ph.D., Chief Technology Officer of Hongene, joins the Patient Empowerment Program to discuss why Hongene aims to help make RNA medicines accessible and affordable for patients everywhere, regardless of preva…

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Ep. 14 - Riding The Waves of Addiction: Jeremy’s Road To Recovery, Resilience, and Rediscovery 52:22

1M ago52:22

52:22

In this captivating episode, Jeremy takes us through the highs and lows of his battle with addiction, starting from his carefree childhood in Indiana to the dark moments of substance abuse that nearly cost him everything. He shares how early experimentation with alcohol and drugs spiraled into a life of arrests, defiance, and self-destruction, desp…

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A New Community for the Exhibition Field, with Cybelle Jones, Steven Rosen, and George Mayer 40:19

1M ago40:19

40:19

Is there an organization for the exhibition field? A new initiative is picking up steam. The exhibition community in the US, some say, has recently gone from having “nearly one” professional organization — to none at all. That’s because of the unexpected 2023 dissolution of NAME, the National Association for Museum Exhibition, a group within the Am…

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Data & Disability - with Matthew Cortland 1:20:15

2M ago1:20:15

1:20:15

In this episode of You First, hosts Keith and Maddie interview Matthew Cortland, a Senior Resident Fellow at Data for Progress. Matthew shares insights about their work in public opinion research and advocacy focused on disability issues and social policies. They discuss their personal journey, including challenges with the healthcare system, and e…

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Knowledge is Power: Part 2 29:34

2M ago29:34

29:34

The concluding episode of the Knowledge is Power series. The knowledge we are gaining at n-Lorem has even more value than benefiting nano-rare patients and their families. These insights will enable scientists to discover new therapeutic targets for both common and rare diseases, fundamentally changing the way we approach health and disease. Survey…

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Ep. 13 - From Struggles To Sanctuary: Stacy Norman’s Story of Resilience and Renewal 36:29

2M ago36:29

36:29

In this captivating episode of Mind Your Nest, Jennifer Rosen sits down with Stacy Norman, the remarkable force behind Peaceful Body Spa in Delray Beach. Stacy’s life story is a powerful narrative of turning adversity into empowerment. From navigating a childhood shaped by a sibling’s severe illness and the shadow of addiction to becoming a young b…

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The Client Side of Major Projects, with Amy Weisser 1:06:21

2M ago1:06:21

1:06:21

“The client’s role is not to solve the problem — it’s to state the problem.” What’s the client’s perspective in major cultural projects? What are “client user groups?” What’s the difference between advocating for the client, and advocating for the project? How do you “inhabit your project?” How might a single gender-inclusive restroom project chang…

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Disability & Gender Equity - with Marissa Ditkowsky 34:35

2M ago34:35

34:35

In this episode of the You First Podcast, hosts Maddie and Keith talk with disabled activist and attorney Marissa Ditkowsky about the challenges and inequities faced by disabled women in healthcare, employment, and financial freedom. Marissa discusses her role as Disability Economic Justice Council at the National Partnership for Women and Families…

1
Knowledge is Power: Part 1 35:19

2M ago35:19

35:19

The knowledge we are gaining at n-Lorem has even more value than benefiting nano-rare patients and their families. These insights will enable scientists to discover new therapeutic targets for both common and rare diseases, fundamentally changing the way we approach health and disease. Survey – Patient Empowerment Program PodcastRegister for the 20…

1
Ep. 12 - Healing With Heart: Tammie Sellman On Empowering Women in Recovery At Wayside House 32:44

2M ago32:44

32:44

In this powerful episode of "Mind Your Nest," host Jennifer Rosen sits down with Tammie Sellman, the Chief Development Officer of Wayside House, a nonprofit addiction treatment program dedicated to supporting women on their journey to recovery. Tammie shares her inspiring story of transitioning from education to nonprofit work and discusses the com…

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Disabled Journalism - with Cara Reedy 56:23

3M ago56:23

56:23

In this episode of the You First Podcast, hosts Keith and Maddie interview Cara Reedy, founder and director of the Disabled Journalists Association. Cara shares her journey from political science and theater to journalism, spending ten years at CNN. She discusses the challenges of being disabled in the newsroom, toxic productivity, and the systemic…

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Adopting a Rare Son with Paul Compton 33:39

3M ago33:39

33:39

Paul Compton and his wife Andrea chose to start a family through adoption. Unknown to anyone, one of their adopted boys, Taeson, was the inheritor of DRPLA, a progressive brain disorder caused by a mutation in the ATN1 gene. Determined to find a treatment and advocate for their son and others with the disease, the Comptons established CureDRPLA. In…

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Scrappy PR for Museums, with Sarah Maiellano 1:04:59

3M ago1:04:59

1:04:59

Can you get big press with a small budget? (Hint: Yes.) For museums, small firms, and independent consultants, this episode is packed with literally dozens of ideas from a master of scrappy PR. What is the #1 tip about PR, if you forgot all the others? How do you get a journalist’s attention? How do you get in the news without something new? Who sh…

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Ep. 11 - From Numbers to Nurturing: Megan Kowalski's Wealth Wisdom 44:48

3M ago44:48

44:48

In this episode of "Mind Your Nest," Jennifer Rosen welcomes Megan Kowalski, a managing director and partner at the Learner Group at Hightower. Megan shares her journey from an unexpected career path in wealth management to becoming a trusted advisor for families navigating the complexities of financial planning. With a unique blend of Midwest warm…

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Not Dead Yet, Assisted Suicide, and Ongoing Disability Fights - Part 2 with Anita Cameron 49:24

3M ago49:24

49:24

Content warning: mentions of suicide, assisted suicide, and medical violence against people with disabilities. In this compelling episode of the You First podcast, hosts Maddie and Keith continue their in-depth interview with Anita Cameron, a prominent activist in the disability rights movement. They explore Anita's role at Not Dead Yet, focusing o…

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Ion Channel Mutations: The Complexities of Treatment 30:16

3M ago30:16

30:16

Mutations affecting ion channels are the most common cause of 'applications for treatment' submitted to n-Lorem. These channels regulate the passage of essential electrically charged ions, like sodium, potassium, calcium, and chloride, into cells. Alas, ion channels pose a significant challenge in the ASO discovery process, as there is little room …

1
Six Keys for Unlocking Your Most Playful, Creative Work, with Jonathan Goldstein and Kyle Talbott 49:59

3M ago49:59

49:59

Have we lost a sense of playfulness in our work … and could we get it back? In museums for children, why does “analog usually beat digital?” What’s a “climbing structure”? What are design metaphors, and why should planners beware of them? How can exhibition teams better empathize with one another’s fears and concerns? Why should a museum profession…

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Ep. 10 - Unpacking My Nest: Jennifer's Journey from Chicago to Delray Beach 33:42

3M ago33:42

33:42

In this special episode of "Mind Your Nest," host Jennifer Rosen switches roles and sits in the hot seat as producer Janine Stella takes the reins. Join us for an intimate and candid conversation where Jennifer opens up about her life's journey—from growing up in a family rooted in financial wisdom to navigating the challenges of a brief marriage a…

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The History of ADAPT, Atlantis Community, and Disability Disobedience - Part 1 with Anita Cameron 1:23:02

3M ago1:23:02

1:23:02

On this episode of You First, we talk with the fantastic disability rights activist Anita Cameron. Anita was, and still is, a core reason why we have disability rights today. They were an early adopter of disability rights and justice advocacy and heavily involved and a leader of the organization ADAPT (known throughout the years as American Disabl…

1
Why We Dose Intrathecally 29:18

3M ago29:18

29:18

The affected organs of our patients determine the route of administration for an ASO, as certain routes can better target specific organs and offer the best potency. The central nervous system (CNS) is the most common target we encounter, and for this, we dose intrathecally. Let’s dive into how this is done and the particulars of why this approach …

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Ep. 9 - Brain Power: From Concussions to Cognitive Coaching with Doreen Bridgman 53:23

4M ago53:23

53:23

In this must-listen episode of "Mind Your Nest," Jennifer Rosen welcomes Doreen Bridgman, a speech pathologist and certified brain health coach, who has dedicated her life to unlocking the secrets of cognitive wellness. Prepare to be captivated as Doreen recounts her transformative journey from an inspiring teenage visit to a brain trauma unit to b…

1
Long Covid & Grilled Cheese 1:04:09

4M ago1:04:09

1:04:09

In this unique episode of You First, hosts Maddie and Keith share a personal and insightful discussion about Long Covid and its effects on everyday life. Initially delayed due to Maddie's Long Covid flare-up, this episode takes a candid and casual approach to a serious topic, highlighting symptoms, the politicization of masking, and the ongoing pan…

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Behind the ASO Design and Discovery with Konstantina Skourti-Stathaki, Ph.D. 27:33

4M ago27:33

27:33

Konstantina Skourti-Stathaki leads the n-Lorem research team behind the design and discovery of ASOs. Nadina, as we at n-Lorem call her, has a passion for helping patients and an excitement for science that is contagious. She joins the Patient Empowerment Program podcast to discuss her day-to-day activities as n-Lorem’s Director of ASO Design and D…

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The Money Pie Chart, with Amy Kaufman 51:52

4M ago51:52

51:52

How do new museums make money — really? In this episode, we lift the veil on new museum projects and money. What is “the peril of the bicycle wheel”? Is it bad to rely on “anchor funding”? How many kinds of revenue should a new museum project have? What happens if you have the wrong number? (Hint: eh, not so good.) How much money do endowments make…

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Ep. 8 - From Grit to Greatness: Bill Reicherter's Journey and Vision for Florida 54:44

4M ago54:44

54:44

Join host Jennifer Rosen on this episode of Mind Your Nest as she sits down with Bill Reicherter, a dynamic entrepreneur and community advocate running for Florida State House in District 90. From his early days sweeping the floors of his father's automotive shop to leading a thriving sign company, Bill shares an inspiring journey fueled by determi…

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Best of the 2023 Nano-rare Patient Colloquium 36:51

4M ago36:51

36:51

We’re recapping the 2023 Nano-rare Patient Colloquium in this special “Best of” episode. For the Colloquium, we gathered the nano-rare community under one single roof for a full day of presentations and panels with experts, partners, supporters, and patients. So, we are bringing some of the top moments directly to your speakers. Discover the origin…

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Circus Lessons for Museum Professionals, with Jennifer Lemmer Posey 50:12

4M ago50:12

50:12

What’s the role of wonder in experience design? What can the circus teach us to make our exhibitions better? (Spoiler alert: a lot.) Could being “with it and for it” be the secret to success for museum projects? How much technology is too much? Can we really design for all five senses? Can an exhibition be a high-wire act — literally? Jennifer Lemm…

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Ep. 7 - From Midwest to Sunshine: Embracing Change and Connection 1:02:05

4M ago1:02:05

1:02:05

In this heartwarming episode host Jennifer Rosen shares a lively conversation with her friend Pam Orzan. Together, they reflect on their transitions from the familiar communities of the Midwest to the vibrant, sunny life of South Florida. Jennifer and Pam delve into their experiences of leaving behind the corporate grind, navigating new beginnings,…

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Disability & Artificial Intelligence - with Lawrence Weru, Ariana Aboulafia, and Jennifer Gray 1:29:14

5M ago1:29:14

1:29:14

Today's episode features disability and artificial intelligence (AI) experts Larry Weru, Ariana Aboulafia, and Jennifer Gray. AI has been around for years, but things changed when OpenAI released ChatGPT. Since then, the news around AI has increased a lot. AI is more than just a chatbot responder; it can be used in many different ways. We talk with…

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507: Unlocking Business Succession: The Power of ESOPs with Keith Butcher 24:48

4M ago24:48

24:48

In an interview with Jason Hartman, Keith Butcher, founder of Butcher Joseph, discusses business succession and Employee Stock Ownership Plans (ESOPs). With many business owners approaching retirement, ESOPs offer a tax-efficient way to transition ownership to employees. This model enhances employee retention and loyalty, providing long-term retire…

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Beyond “Exit Through the Gift Shop”, with David Franke 57:18

5M ago57:18

57:18

Do museum stores actually make any money? What are they really for? Can a store act like an exhibition? What does “cap rate” mean? How big should a museum store be? What percentage of visitors go into one, and how many of them buy something? Why should you get an expert to design your store, and what happens when you don’t? David Franke (museum sto…

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The Hurdles of Insuring Patients with Nano-rare Mutations with Alan Lotvin, M.D. 50:51

5M ago50:51

50:51

What's preventing insurers from covering the specialized care of patients with nano-rare mutations, thereby expanding access to available treatment options? Is it the population size, cost, or perceived risk? Given that the initial discovery of nano-rare mutations is relatively recent, paving the way for this population requires a nuanced approach …

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Ep. 6 - Unsung Heroes in the Sunset Years A Story of Caregiving and Compassion 53:50

5M ago53:50

53:50

As we wade through the waters of elder care, I'm joined by Allison Shevlin, whose heart's mission is caring for our seniors with the grace and dedication they deserve. Her love for this honored generation, sparked by cherished childhood memories, is a reminder that our later years are not just an epilogue but a chapter rich with wisdom and stories …

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#CripTheVote and Voting Advocacy - with Andrew Pulrang and Gregg Beratan 59:42

5M ago59:42

59:42

This podcast episode features Andrew Pulrang and Gregg Beratan, prominent figures in disability advocacy and social change. Their pioneering initiative, #CripTheVote, created alongside Alice Wong, has been important in raising awareness about the political power of disabled citizens and sparking meaningful conversations about disability, politics, …

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Anna’s Story of Hope and Help: FUS-ALS with Sonja Kämpfer and Dr. Neil Shneider 43:06

5M ago43:06

43:06

Stan Crooke speaks with Sonja Kampfer and Dr. Neil Shneider, associate professor of motor neuron disorders at Columbia Medical School, about Sonja’s daughter, Anna. Anna was diagnosed with an aggressive, fatal form of ALS at the age of 16. ALS is rare in teenagers, and this form of ALS is the worst of the worst. Sonja tells Anna’s story initial sym…

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Ep. 5 - Sculpting Confidence: Dr. Edward Davidson's Artful Approach to Plastic Surgery and Patient Empowerment 50:28

5M ago50:28

50:28

Embark on an insightful voyage into the realm of plastic surgery with the guidance of Dr. Edward Davidson, facial reconstruction virtuoso, and my personal confidant in aesthetic transformation. Together, we unravel the tapestry of selecting a plastic surgeon who's not just board-certified but also trustworthy, ensuring your journey under the knife …

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An Economic Planner's Advice to Museums, with James Stevens 49:00

6M ago49:00

49:00

Why is economic planning so vital to any new museum project? What happens if you don’t do it? What is “dark tourism”? Why do economists think about audiences? Can a museum have “ROI”? Which is more important, a profitable museum event, or one that advances a museum’s mission? What can economics teach us about how to make our projects better? James …

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Mostyn’s Story: Mother’s Day Special with Zoe Hummel 50:06

6M ago50:06

50:06

Motherhood is a journey filled with challenges, but every step is worth it for the love and joy it brings. Zoe Hummel joins the show in this special Mother’s Day episode to discuss her son Mostyn’s emotional story to diagnosis, and the unique challenges and triumphs of being a nano-rare mom. Order your Mother's Day card by May 6, 2024! All proceed …

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A Guitar That Teaches Civil Rights, with Michele Y. Smith 44:04

6M ago44:04

44:04

What is the “humanities gap” — and why is it a huge opportunity for museums? Why can’t everybody be a philanthropist for the day? What does “cultural literacy” mean, and how can it unlock new approaches to the collections we put on display? Why could a shortfall in humanities funding suggest new ways for museums to be relevant? Why shouldn’t a muse…

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Ep. 4 - Bridging Generations: Unveiling the Art of Multi-Generational Wealth and Family Harmony 47:46

6M ago47:46

47:46

Join JR Gondeck, a renowned wealth management expert, and I for an engaging discussion on multi-generational wealth planning. We explore the evolution of family financial conversations, from top-down directives to inclusive dialogues involving every generation. Delve into topics such as millennials' financial challenges, the benefits of early inher…

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The Questions You Have to Ask Before the Project, with Carolynne Harris (Remastered April 2024) 34:54

6M ago34:54

34:54

We might think a design concept is the first step — but it’s not. What do you need to ask yourself, before you even start? What does your community want from your new museum, and how can you find out? What happens when you have funding for 10 staff, but you design a museum that will take 25 staff to operate? What’s more important, the cost of creat…

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Physicians and Institutions Transform the Lives of Nano-rare Patients with Olivia Kim-McManus, M.D. 48:53

6M ago48:53

48:53

Research physicians and their associated institutions are monumental to the mission of the n-Lorem Foundation and are truly transformational to the lives of the nano-rare patients they treat. Olivia Kim-McManus, M.D., was one of four physician panelists at our first Colloquium who participated in "A Physician's Perspective on n-Lorem and Nano-rare"…

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Rethinking Climate Control in Museums, with Roger Chang 50:09

6M ago50:09

50:09

Why is “70/50” the gold standard? Should it be? Who decided? Does every gallery really need to be 70 degrees, plus/minus two? Does every storage space really need to be 50% humidity, plus/minus five? Is that a reasonable goal for most museums? At what cost? What’s the difference between “AA” climate control, and just “A”? How much energy could we a…

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Ep. 3 - From Windy City to Sunny Shores A Tale of Transition and Triumph in Real Estate 30:52

6M ago30:52

30:52

Have you ever packed up your life and set sail for a sunnier horizon? My longtime friend Robin Depeder did just that, trading Chicago's skyscrapers for Florida's sunshine. On this heartwarming episode of Mind your Nest, Robin recounts the emotional and professional journey of relocating her thriving real estate career. She sheds light on the contra…

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Embracing Chaos, with Jon Maass 59:26

7M ago59:26

59:26

What if chaos in cultural projects is something to embrace, not fear? Can chaos theory give us new insights about how to manage complex work? Are we advocates for the owner of a project, or for the project itself? What are the three things upon which the success or failure of a project depends? Sometimes, is it better to let a few things change, ra…

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