Podcast Vasculitis terbaik (2024)

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Ep 226 - Save Your Emotional Energy for the People Who Matter 18:30

4M ago18:30

18:30

Are you EXHAUSTED because you're constantly trying to explain yourself... all the time... to everyone? When you have to say no, when you have to reschedule, when you have to limit yourself, when you're not feeling well... and on and on to forever. Today I talk about how to handle this and how to make sure this emotional exhaustion doesn't hurt your…

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Ep 225 - Gift Ideas for People with Chronic Illnesses 16:31

5M ago16:31

16:31

It's the most wonderful time of the year... which means all kinds of gift giving is going on. Today I talk about 12 different gifts most people with a chronic illness would absolutely love! I also talk about what NOT to gift and why! Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and lea…

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Ep 224 - Let's Talk about Azathioprine (Imuran) 20:34

5M ago20:34

20:34

Azathioprine is a common medication for people with chronic illnesses. Over 800,000 people are prescibed it in the US alone. Today I dig into details, what you need to know, and share my own experience as well as several other people's experiences. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUG…

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Ep 223 - How to Survive the Holiday Season with a Chronic Illness 11:07

5M ago11:07

11:07

It's the most stressful time of the year! So today I talk about five ways to make sure you not only survive the holiday season, but you can still thrive through it. You deserve to experience a holiday season that lights you up, brings you joy and gives you memories of love and laughter not stress, anxiety, pain and exhaustion. Please don't forget t…

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Ep 222 - How to Show Support for Someone with a Chronic Illness 9:45

6M ago9:45

9:45

Ever wish your loved ones knew how to show up for you and support you? Well, this is the one for you to send to your loved ones! Today I offer 5 ways that our healthy loved ones can work to show up for us with actionable tips - as well as a few ways that they probably think they're being supportive when it really comes across as telling you you're …

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Ep 221 - [Part 7] Raising Kids as a Mom with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis) 15:35

6M ago15:35

15:35

Raising kids when you have a potentially fatal auto immune disease is a head trip. It’s an extra kind of difficult emotionally that you can’t imagine until you’re not living it. Today I talk about that journey mentally and emotionally... as well as ways my husband and I intentionally are creating healthy habits that support our daughter's bodies to…

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Ep 220 - [Part 6] Postpartum with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis) 19:30

6M ago19:30

19:30

What happens to a woman's body after she delivers a baby is... a LOT of things. If you have an auto immune condition - or a rare disease - it becomes much more complicated. Today I share my journey postpartum with both of my babies. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leav…

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Ep 219 - [Part 5] My Pregnancies with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis) 20:44

6M ago20:44

20:44

It's not all doom and gloom. It's not all horror stories. Today I share my journey with both of my pregnancies and some of the challenges I faced as well as the victories throughout the process. I also tell you what I whole heartedly believe was the key thing I did to increase my fertility and get pregnant - even with low egg count and other challe…

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Ep 218 - [Part 4] The Challenges of Getting Pregnant with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis) 23:56

7M ago23:56

23:56

If you're hoping to or planning getting sick and you or your spouse have Granulomatosis with Polyangiitis... this episode is for you. I dive into challenges you need to be aware of as well as my own personal struggles. I share medication insight, what you'll need to advocate on... and what you need to ignore that the scary clinical medical field wi…

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Ep 217 - [Part 3] Azathioprine Treatment with Granulomatosis with Polyangiitis (formerly Wegener's Vasculitis) 20:39

7M ago20:39

20:39

When the "best" treatment that works for the "vast majority" of people with your disease... doesn't work for you. What's next? In today's episode I talk about the treatment that did work, some really tough discussions my husband and I had to have, and the devestation when you start to have a flare even though you're doing EVERYTHING right. Links me…

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Ep 216 - [Part 2] Rituximab Treatment Journey with Granulomatosis with Polyangiitis (Wegener's Vasculitis) 17:09

7M ago17:09

17:09

If you've been diagnosed with any form of ANCA Vasculitis someone has probably talked to you about Rituximab/Rituxin. Today I talk about my process in the first year of being sick and getting three rounds of Rituximab as well as the consequences of being on high doses of prednisone. Please don't forget to click that subscibe button whereever you li…

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Ep 215 - [Part 1] Onset and Diagnosis of ANCA Vasculitis - Granulomatosis with Polyangiitis (formerly Wegener's) 14:09

7M ago14:09

14:09

When you start having symptoms - but no one puts the pieces together things can go from bad to deadly FAST. That's what happened to me. This is part one of onset and diagnosis of my journey with a potentially fatal rare disease. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a …

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Ep 214 - How to Regulate Your Nervous System with a Chronic Illness 3:02

8M ago3:02

3:02

Dealing with a chronic illness is incredibly difficult on your body. The stress, the unknowns, the changes, the fear, the pain… it all takes a toll on your nervous system. Which then takes an EXTRA toll on your overall well-being and often results in a dysregulated nervous system. The reason this is a problem is that this extra stress can worsen yo…

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Ep 213 - The Habits I've Built to Support, Heal and Strengthen my Chronically Ill Body 29:27

8M ago29:27

29:27

Have you ever made a list of the healthy habits you have built to support your body and to thrive? I recently did this and found myself so proud of how far I have come. Today I talk to you about my process and go into 20+ habits I have built to change my life. Please don't forget to click that subscibe button whereever you listen to the podcast and…

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Ep 212 - The Mental Toll of Isolation with Chronic Illness 14:57

8M ago14:57

14:57

It doesn’t get talked about enough, the isolation. The way everyone drifts away. The way you don’t have the energy to show up and participate. So even though you’re lonely and wish you could be with people, you also need to be left alone. Today we talk about this isolation, the toll it takes on your mental health and four ways to manage it! Be sure…

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Ep 211 - Should I Have Kids After Onset of my Chronic Illness - Pregnancy, Medications, Morals? 30:05

8M ago30:05

30:05

If you don't already have children before the onset of your disease, it can be an overwhelming prospect. Will you still be able to properly care for a child? Is it fair to bring them into a home where you may be incredibly limited? What about pregnancy? Should you get pregnant? Will your disease or your medications negatively affect your child? I g…

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Ep 210 - Clinical Lab Results vs OPTIMAL Lab Results - What you Need to Understand 20:21

9M ago20:21

20:21

Have you ever had a doctor glance at your blood work and tell you everything is "normal"? Even though you KNOW something is off? Clinical medicine focuses on critical care whereas functional medicine focuses on total healing and balance BEFORE you get critical... and one of the biggest differences is how they are able to interpret your blood work. …

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Ep 209 - Your Guide to Surviving Your First Year of Chronic Illness 13:51

9M ago13:51

13:51

Being diagnosed with a chronic illness is, to say the least, a life-changing experience. Coping with the challenges that come with chronic illness is no light thing to overcome. Oftentimes it feels so overwhelming that you cannot even begin to process what your new reality will be. The good news is that there are several things that you can do to s…

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Ep 208 - Negative Outcomes from Stress Don't Have to Control Your Life 15:27

9M ago15:27

15:27

Stress leads to inflammation. Inflammation leads to illness. It’s probably a formula you're familiar with. You who live with the awareness that inflammation is your enemy - I mean, really for health is EVERYONE’S enemy, but for the already chronically ill - it is a much more intense adversary. Today I talk about 7 ways to help support your body and…

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Ep 207 - Chronic Illness Warriors: You Are Strong, Brave, Kind and True 11:40

9M ago11:40

11:40

If you’ve been chronically ill for a while, you have been through the ups and downs. You know the crazy mind games it ends up being. You also know that many MANY people, supported by mainstream media narratives, jokes, and comments, see people with chronic illnesses and less than. They perceive us as less than. They believe we are a burden on socie…

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Ep 206 - Chronic Illness Reminder: Social Media isn't Reality 11:46

10M ago11:46

11:46

As you sit in your home, exhausted, struggling with brain fog, in pain and so much more, social media is often a window into the rest of the world. It is a lifeline to the friends who understand, who are often also at home struggling with the war inside their bodies. There is so much GOOD that has come, and can continue to come from social media. T…

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Ep 205 - You Deserve a Medical Team that Believes You 19:20

10M ago19:20

19:20

When you leave your medical appointments you should feel seen, heard, supported... and maybe even a little bit hopeful. If you DO NOT feel this way, it's time to start buliding a different medical team. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things h…

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Ep 204 - You have the Freedom to Choose Your Chronic Illness Care 17:28

10M ago17:28

17:28

Let’s be clear - you have MANY freedoms in your chronic illness journey. Today we look at several and encourage you to take control of your life! YOU HAVE THE POWER TO CHOOSE!!!! Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podc…

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Ep 203 - Your Chronic Illness Doesn't Make you a Bad Parent 16:36

10M ago16:36

16:36

Your disease can affect everything in your life. Not just what you can do physically, but your time and your emotional limitations as well. So it is absolutely going to impact your parenting. Parenting is the most all encompassing thing you can do in your life, also affecting everything. When was the last time you thought to yourself - maybe I’m a …

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Ep 202 - Get the Support you Need in Between Doctors Appointments 12:54

10M ago12:54

12:54

6+ months wait is unacceptable. The issue is that by the very nature of having a chronic illness, your body and your life is unpredictable. Even if your appointment is a follow up or continuing care with a medical provider, it can be difficult to make sure you make it to these appointments. Throw in the pandemic and the post pandemic challenges and…

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Ep 201 - The Importance of Boundaries 9:48

11M ago9:48

9:48

Boundaries are VITAL for your mental, emotional and physical health - chronic illness or not. Today I dive into why you need boundaries and easy ways to implement them. Please don't forget to click that subscibe button whereever you listen to the podcast and do me a HUGE favor and leave a review! These two things help others find the podcast, find …

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Ep 200 - Interview with Chantel Laughlin a Money and Mindset Coach 50:08

11M ago50:08

50:08

Meet Chantel! After realizing that she was holding herself back from things she wanted, she decided to take action and learn how to take control of her money and her life. In today's interview she gets vulnerable AND shares some amazing insights as to how to get started and ways to maximize your financial potential. Links: www.chantelcoaches.com ww…

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Ep 199 - Interview with Holly Bertone Mindset and Gratitude Coach 1:02:39

11M ago1:02:39

1:02:39

You aren't going to want to miss this episode! Holly is a cancer survivor AND auto immune warrior who spent most of her life as a top tier over achiever and has had to learn to thrive through life no matter how much it throws at you... and through that process she discovered the power to take control of her life and her happiness! Here's where you …

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Ep 198 - You are Worth Loving, Chronic Illness and All 13:21

11M ago13:21

13:21

I know the pain of realizing people you believed were part of your inner circle separating themselves from you. They don’t want to see what you share online. The reality of what you’re going through makes them feel a certain way. Some people won’t want to see or hear it. Some people will walk away. Some people will unfriend and unfollow… and it suc…

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Ep 197 - Vasculitis Insights: Giant Cell Arteritis (Temporal Arteritis) 13:41

11M ago13:41

13:41

A breakdown of what Giant Cell Arteritis (GCA) and what you need to know as a patient as well as insight from patients on life with GCA. Here's what you'll find in this episode: What is Giant Cell Arteritis (GCA)? Who gets Giant Cell Arteritis? What Causes Giant Cell Arteritis? What are the Symptoms of Giant Cell Arteritis? How is Giant Cell Arteri…

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Ep 196 - Vasculitis Insight: Behcet’s Disease 21:25

11M ago21:25

21:25

A breakdown of what Behcet's Disease and what you need to know as a patient as well as insight from patients on life with Behcet's. Here's what you'll find in this episode: What is Behcet's? What are the classic symptoms of Behcet's? How is Behcet's Diagnosed? What Causes Behcet's? Who gets Behcet's? How is Behcet's Treated? Side Effects from Medic…

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Ep 195 - Vasculitis Insights: Cutaneous Small-Vessel Vasculitis aka Leukocytoclastic vasculitis 14:59

12M ago14:59

14:59

A breakdown of what Cutaneous Small-Vessel Vasculitis (CSVV) and what you need to know as a patient as well as insight from patients on life with CSVV. Here's what you'll find in this episode: What is Cutaneous Small-Vessel Vasculitis? History of Cutaneous Small-Vessel Vasculitis? What are the symptoms and signs of Cutaneous Small-Vessel Vasculitis…

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Ep 194 - Vasculitis Insight: ANCA Vasculitis - Eosinophilic Granulomatosis with Polyangiitis 17:20

12M ago17:20

17:20

A breakdown of what Eosinophilic Granulomatosis with Polyangiitis is and what you need to know as a patient as well as insight from patients on life with EGPA. Here's what you'll find in this episode: What is EGPA? What are the symptoms of EGPA? Complications from EGPA How is EGPA Diagnosed? How is EGPA treated? Side effects from the medications Ca…

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Ep 193 - Vasculitis Insights: Cryoglobulinemia 9:34

12M ago9:34

9:34

A breakdown of what Cryoglobulinemia and what you need to know as a patient as well as insight from patients on life with Cryoglobulinemia. Here's what you'll find in this episode: What is Cryoglobulinemia? What are the symptoms of Cryoglobulinemia What Causes Cryoglobulinemia? How is Cryoglobulinemia treated? Life with Vasculitis Patient to Patien…

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Ep 192 - The Importance of Building HEALTHY Relationships with your Chronically Ill Friends 17:04

12M ago17:04

17:04

It can be so easy to want to just go all in with a new friend who "gets it" when for so long you have felt alone in your rare disease or chronic illness journey. Today I talk about why you need to avoid the "too close too soon" trap and how to do that! You can find Team Vasculitis at: http://www.teamvasculitis.com Please don't forget to click that …

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Ep 191 - Navigating a Career and Motherhood with a Chronic Illness 9:07

12M ago9:07

9:07

Meet Lauren! A Vasculitis warrior who has managed her career at a large corporation, with two daughters, under the age of 5 at the time of diagnosis, AND a rare disease that caused permanent damage to organs as she sought answers. Watch her talk here: https://rumble.com/v2nz4m8-navigating-a-career-and-motherhood-with-a-chronic-illness.html Please d…

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Ep 190 - Reclaiming Your Health and Fitness with Kayla ProKop 28:35

12M ago28:35

28:35

Today's episode is a special one! Today for the 2nd Annual Team Vasculitis International Vasculitis Awareness Day Symposium Kayla shares with you her journey with Vasculitis, POTS, Fibromyalgia and more... and not only how fitness helps her every day, but how it actually takes much of her pain away. Follow Kayla at: https://www.instagram.com/autoim…

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Ep 189 - Vasculitis Insights: Cogan’s Syndrome 13:10

12M ago13:10

13:10

A breakdown of what Cogan's Syndrome and what you need to know as a patient as well as insight from patients on life with Cogan's. Here's what you'll find in this episode: What is Cogan's Syndrome? Who gets Cogan's Syndrome? What are the symptoms of Cogan's Syndrome? How is Cogan's SyndromeDiagnosed? How is Cogan's Syndrome treated? Side Effects fr…

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Ep 188 - Vasculitis Insights: Aortitis 16:05

12M ago16:05

16:05

A breakdown of what Aortitis and what you need to know as a patient as well as insight from patients on life with Aortitis. Here's what you'll find in this episode: What is Aortitis? What causes Aortitis? Who gets Aortitis? What are the symptoms? How is Aortitis Diagnosed? How is Aortitis treated? Side Effects from Medications Your Medical Team Lif…

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Ep 187 - Vasculitis Interview with Takayasu's arteritis warrior Lucy De Matos 1:13:56

12M ago1:13:56

1:13:56

Meet Lucy! After fighting for anyone to take her seriously, because she was "too young" to be sick, Lucy had to learn how to manage life with Takaysau's Arteritis, being a young mom, and advocating for herself. Now, she uses one of her strongest tools - nutrition - to help others live healthier lives. Read her blog post on the Anti-Inflammatory Die…

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Ep 186 - Vasculitis Insights: Anti-GBM/Goodpasture's Syndrome 18:59

12M ago18:59

18:59

A breakdown of what Anti-GBM/Goodpasture's Syndrome and what you need to know as a patient as well as insight from patients on life with Goodpasture's. Here's what you'll find in this episode: What is Goodpasture's? What causes Goodpasture's? What are the symptoms? How is Goodpasture's Diagnosed? How is Goodpasture's treated? What are Your chances …

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Ep 185 - Vasculitis Inights: Central Nervous System Vasculitis 17:48

12M ago17:48

17:48

A breakdown of what Central Nervous System Vasculitis and what you need to know as a patient as well as insight from patients on life with CNS/PACNS. Here's what you'll find in this episode: What is CNS? What are the symptoms of CNS? What causes CNS? How is CNS Diagnosed? How is CNS treated? Side effects from the medications Life with Vasculitis Pa…

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Ep 184 - Vasculitis Insights: What is Vasculitis 21:27

12M ago21:27

21:27

I get asked so often “What is Vasculitis?” So today - if you’re listening to this in real time - it is May 2023 and that means it’s Vasculitis Awareness month! In honor of that I thought I would kick the month off with an overview of what this family of diseases is. In today's episode: What is Vasculitis? Who gets Vasculitis? What are the symptoms …

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Ep 183 - Cold Therapy and Chronic Illness 19:22

1y ago19:22

19:22

Cold can be healing! Have you ever utilized heat or cold for your pain or for your health? Cold water therapy is the practice of using water that’s around 59°F (15°C) to treat health conditions or stimulate health benefits. It usually involves submerging your body in cold water for a short period of time, usually between 30 seconds to a few minutes…

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Ep 182 - 10 Ways to Manage Your Mental Health when You Have a Chronic Illness 17:09

1y ago17:09

17:09

The longer you struggle with your health - physical or mental, the more of a struggle it becomes because it starts to influence more and more aspects of your life. So the best thing you can do is to face it head on and do it with a gameplan. Management is essential to your ability to function. So… Here is what I suggest you focus on to go from over…

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Ep 181 - Why I became a Chronic Illness Advocate 14:58

1y ago14:58

14:58

I felt so alone. I felt really lost. I felt completely scared. I didn’t know what was happening, or how to totally manage it. I was losing friends and had loved ones even attacking me because I wasn’t getting better, or showing up for them the way I used to be able to. Even the people I told how sick I was, didn’t understand. They interpreted it as…

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Ep 180 - My Favorite Lies Doctors Tell 11:51

1y ago11:51

11:51

One of the biggest struggles the chronic illness community struggles with is the harsh realization that doctors will lie and won’t care and won’t help the vast majority of the time. Yes, seriously… the vast majority of the time. Today I share my three favorite lies. Here's the Reel I mention: https://fb.watch/jH7JV6pi1h/ Please don't forget to clic…

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Ep 179 - They Won't Understand... and You Need to be Okay with That 12:01

1y ago12:01

12:01

When it comes to living with a chronic illness it can feel as though you’re living in a completely different reality than the rest of the world around you. Loved ones you were once in such alignment with, no longer understand what you’re going through… sometimes they even say things like they don’t really know who you are anymore. They’re dismayed …

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Ep 178 - [Personal Story] There is Better Care out there if You Have a Chronic Illness or a Rare Disease 24:02

1y ago24:02

24:02

My family moved across the country - and one of the biggest reasons was to be closer to different care for my rare disease. After we had been treated poorly, ignored, attacked, and dismissed by multiple medical facilities in California I had only the smallest glimmer of hope that things could be different... Today I share with you what happened whe…

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Ep 177 - How to Choose the Right Functional Medicine Practitioner when You're Chronically Ill so you Don't Waste Money! 19:43

1y ago19:43

19:43

One of the challenges you face as a chronically ill patient is figuring out how to best care for and support your body. For most of us it doesn’t take long to discover that clinical medicine is only one piece of the puzzle. I talk alot about functional medicine because I truly believe that so much more can and should be done to support your health …

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