Deliverer of CF Hope, Bob Emmelkamp

Living With Cystic Fibrosis

You will want to learn more about Bob Emmelkamp after this podcast, I promise!

I feel like Bob is everywhere and supportive of everyone.

Without a DNA connection to cystic fibrosis, Bob Emmelkamp became a lifelong CF fund-raising volunteer in 1976, when he helped put on a high school dance marathon where proceeds benefited the CFF. Since then, he has raised hundreds of thousands of dollars to advance research for a cure for CF, spreading the word and explaining the latest CF research news, and personally funds grants to the labs of some of the top CF scientists. For the past 20 years, Bob has attended the annual North American Cystic Fibrosis Science Conference. In 2017, Bob received a special invitation to attend the European Cystic Fibrosis Society’s exclusive CF Basic Science Conference in Portugal and was also asked to create and present a poster on “The Changing Nature of Interactions between Research Scientists and Patients”.

Producer: Beth Vanstone If you'd like to be featured contact her at: [e-mail]

Follow Bob at these locations: delivererofhope.net

Follow Bob: cfrn.computerbob.net

And follow him here: https://www.facebook.com/groups/CFResearchNews

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website: https://thebonnellfoundation.org

Bonnell Foundation email: [e-mail]

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Genentech: https://www.gene.com

Viatris: https://www.viatris.com/en

Please like, subscribe, and comment on our shows, wherever you get your podcasts.

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: [e-mail]

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en